Saturday, August 16, 2008

From The Beggar

All,
This will probably be my last post on this blog. I am going to shift to our church blog space. You have thrilled me with your posts. You have lifted my spirits. You have made me laugh with knock-knock jokes. You have expressed love and concern for my family and me. For all these and so many more, we are grateful. Thank you for all you love.
Millie Tharle brought us a printed form of the entire blog. There were many posts that we had not read. I have now read them all and have been touched over and over again. Thank you.
I need to clear something up before leaving this blog. You already know it, but i need to remind you; i am a man with feet of clay. I am going to have to forgive some of you for what you wrote. I will have to ask you to forgive me for liking it! Thank you for all your words of affirmation. But remember; I am just a guy, a weak, wounded, human being susceptible to anything any of you are subject to. I don't have a cape, can't jump a building, and i am burdened with the full mantle of humanity.
As you have prayed for me in my illness; i ask you to do all the more for me in ministry. My heart's desire is to be a good husband, father, and pastor. And in each of these ministries I want to finish well. I exist only by God's grace. Please partner with me in the future. Partner with me as a prayer warrior for ministry.
Summit is facing wonderful opportunities in our future. We need more square feet with no new debt. We need to get out of debt and stay that way. We need to explore God's plan for starting new works. We need to strengthen our resolve in following God's plan for our lives and the ministry at Summit. Pray, pray, pray. We must not be behind in following God. The only thing worse is to be ahead of God's will. Pray that I have the wisdom to lead us in God's path of righteousness.
I hope you will follow me to the new blog on the Summit web site. I hope to hear from you there.
We will not be able to be with you tomorrow. I am just too weak to handle. We will be back as soon as possible. Love you all.
PA

Saturday August 16

Hey all,
It has been a while since i posted - kinda let Aaron take over. Thought "he" was the one you wanted any way!! Not that i blame you . . .
Thanks again for all your kinds words and funny post they continue to make difficult days bearable.
I have gotten so many cards with rainbows on them that i will be able to enjoy rainbows any time i want in the future. But man just can't manufacture what God creates!! His timing is always perfect also.
A word of warning should you come to the blog and find no new post for a while- you might check out Summit's blog. Aaron is going to begin posting on our churches site. We have had a little difficulty with this blog the last couple of days and think i understand the difficulty some have had posting. Technology is fantastic - when it works!!!
The churches web site is TheSummitBaptistChurch.org.
Thanks again for everything . . .

nise

Friday, August 15, 2008

Friday evening

All,
The sick guy again.
Sorry, no post today. Too weak, too sick. I am doing the best I can, but, well, i am just not up to a post. Tune in tomorrow.
pa

Thursday, August 14, 2008

Thursday afternoon

All,
Sick, lame, and abused guy here.
Today I thought I would just will myself well. As soon as possible we left the house. We went to get drugs.............interpret it any way you wish! We had breakfast. We went to Discovery Mills mall so i could walk around and do so in the environs of the Bass Pro Shop. That is when the twin brothers fatigue and exhaustion showed up. The attitude was right; the physical support system was just not willing.
Denise served as my beautiful crutch to get back to the car. I slumped into the passenger's seat and found the little lever that makes the seat a recliner. I reclined, she drove and strength is now returning. I can't believe that I am no longer able to do what i did when i was 20! That was a mere 8 years ago. I am fading fast.
My prayer life has gone and is going through a metamorphosis. Prior to about 30 days ago, most of my prayers were for the hurting, walking wounded, the angry, lost, and ignorant. These past few days have been consumed with a child talking to his Father, who happens to be the Great Physician. He hasn't been forthcoming on His rational; it is strictly a need to know basis. I have the needs and He has the know. That will have to do for now.
Through this adventure I have settled on a new name for myself. I need a new name that more accurately reflects my close relationship with the All Mighty. I need a name that beautifully articulates my walk with the King of Kings. I need a name such that, when people speak it, they immediately know that i am an heir in waiting. I need a weighty name that is worthy of one like me. No common name will ever do now. I have been introduced to my true spiritual self and my new name must be in stride with my new found walk and position in Christ!
From now on I can no longer be merely "Aaron." To convey all the above, I must now be "Aaron, the beggar." I think that sums it up nicely. I am completely dependant on His grace. Grace, Amazing Grace, for a beggar like me...............
Blessings,
The Beggar

Wednesday, August 13, 2008

Wednesday evening

All,
Sick guy here.
Well, i am over my emotion from earlier. Here is the rundown for today:
The dr. appointment was at 10:15. By 10:30 i was again free from any connection to an appliance. By 10:45 it was obvious that i was once again failing my test. All the prep from the week gone by, well, went by. The doctor wanted to do a cystoscopic exam later in the day and wanted to replace Mr. Foley! I asked for a little time off to see if the system would somehow jump-start. He agreed, but gave me a 1:00 deadline. If the flow was not on by then, I had to phone him to schedule the cysto exam.
You are ahead of my aren't you? One came and I called. There was a series of miscommunications before the receptionist from the surgery center phoned and asked if I were coming or not. I told her I was just waiting on the call. She said be here in 15 minutes. At 3:45
we ran from the house headed for the surgery center at Kennestone.
As soon as we arrived the took me back for the prep and procedure. I asked for Valium. They laughed. I was dead serious. Hey, if I have to go through all this poking and prodding I thought it wouldn't be too much to ask to be comfortable; or at least drugged to the point I didn't care that i was about to be humiliated (with an audience) and prodded in a most unpleasant way. Still no Valium.
The scope resembled a black industrial strength hose you might see at a service station or fire truck. There was a little light on the tip. I guess the doc might not have good night vision. I asked him if he needed a map. He did not.
Once the truck pulled the scope from me the doc was all smiles.
"No need for the laser! You have an infected and inflamed prostate." Well, normally that would not be good news. Anything short of a death sentence sounds good these days! "So what are we going to do?" I asked. I am going to change your antibiotic and you will come back in two weeks. Any smart person would have just let that be enough. Nobody has ever accused me of being smart. "What about my current inability to void?" I asked naively. "We will replace the Foley for the next two weeks." He said that as he motioned to Bubba who stood in the corner with the Foley and was all smiles. Bubba learned to perform this delicate maneuver while running barbed wire on a ranch somewhere in the desert southwest where they have no gloves and no hand lotion.
Once the appliance was sufficiently imp ailed, he shook my hand and congratulated me. In a moment of complete pain and weakness I actually said, "Thank you." Did I say that i have never been accused of being smart?
I requested a wheel chair to make my exit. They laughed. I guess it is with my Valium.
When i checked out I told the young lady that I had lost something since i saw her. She asked what it was. I said, "my dignity. If you see it will you please call?" She checked her paper work to make sure she had my number. Now I know what happened to my Valium.
After we left I took a few moments to lament my situation. Lamentation is one thing that requires no movement at all below the belt.
After a well applied internal poultice of hamburger my spirits were lifted. Next time i take the hamburger before the doc visit.
i am well. i am in a holding pattern for the next two weeks. As far as i am concerned, The Lord missed a good chance to return a few weeks ago.
I do so hope this post is taken well. If not, let me suggest a cystoscopic exam. I just had one and it has changed me!
Blessings,
PA

Wednesday afternoon.

All,
Houston; we have a problem..................
Well, try as i might, the system just will not work. As i type, i am waiting for a phone call to tell me when to report to Kennestone. The doctor plans to do some type of procedure which should correct the problem. All i know is that he mentioned scope, camera, and laser. All of which are far to big to go where he intends to put them. Right now i have no other option. The bladder function is unchanged over the past week. Something has to be done, and I am just the guy to have it done!
When I get through this I should have a working experiential understanding of most invasive procedures which are done without the aid of anesthesia. So, in the future, when you wonder how something feels, just give me call.
I did learn today that the nurse who has done such a great job is not a Christian. Maybe that is why I need to go through this! Just wish i had known that a week ago. But then i guess it is my fault for not finding out then for myself.
Please keep the prayers going. Looks like i am still in the need.
Blessings,
PA

Tuesday, August 12, 2008

Tuesday evening, at hom

All,

Today has been by far the best day post surgery. Again, that isn't saying much; however, it is relative. I am feeling better and stronger each passing day. I am tempted to say that i am 5% better each day. That might actually be an accurate approximation.
Tonight we have had a glitch in the system. It appears that both the bladder and my new pouch are having some complications. A phone call back to St. Pete provided an prescription and a bit of much needed assurance that "things" are normal. Tomorrow i will share my new developments with the bladder with the doc. We are simply believing that tomorrow will bring a simple answer and a fully functioning bladder. Right new we are watching Olympic diving; preparing for tomorrow!
Can't wait to post tomorrow afternoon.
Blessings,

PA

Tuesday, at home

All,
Formerly sick guy, now weak,worn, and highly motivated guy here.
The last series of posts have been a special blessing. It was my delight to say I was better yesterday. Today is a slower continuation of yesterday.
I am a morning person. I can't sleep beyond the rising of the sun. That is why i got out of bed this morning at 11:30. Honestly; I am ruined!
We got out for a while this morning. Well, by the time we got out it was already afternoon. I gave Mexican a try for lunch...........i am still enjoying it. That was probably a bit premature for a new system. Denise and I split a Chimichanga. I left half of my half.
Today we are going to try to get out twice!!! I just can't wait. I feel like the old hound dog in the back of a pick up; excited to go for a ride with his tongue hanging out in the breeze. People tend to stare at me a bit with the tongue hanging out and all. But I DONT CARE!
Have I mentioned that I don't have cancer?
Through all the physical trials, we may have failed to explain that this surgery was the only option to remove any risk of my cancer returning. That is pretty big to us. For over five years now every ache and pain sent me to the doc. Each time he would mumble something about the cancer returning. To quote the great theologian, Chief Inspector Clouseau (Of Pink Panther fame), "Not any muure!"
I have been studding hard for my bladder test tomorrow. At 10:30, i will face my examiner. She scares me. She is 5'4", black hair, brown eyes, and 21 years old. I am shuddering right now!
By this time tomorrow, i hope to claim the Doxology again. Until then, I am longing to be back with you. Thanks for your prayers and love.
Blessings,
PA

Monday, August 11, 2008

Monday, at home

All,
Sick, but improving, guy here.
Today has been the best day since surgery. That really isn't saying too much. Let me rephrase: today has been a good day. Most of the pain has subsided. Nausea is completely manageable. Strength is coming back a bit at a time. Dizziness is almost completely gone. My vision is almost back to normal. All these and more are praises won at the throne! Thank you for your faithfulness in praying. I am living proof of the power of prayer.
Let me clear something up; I don't have a "J-pouch." I have what is called a BCIR. That stands for Barnett Continent Intestinal Reservoir. Most of the people who have this surgery previously had a "J-pouch." You can look it up on line if you want to know more. I am afraid that i know too much about it already.
I have learned that we now have a Blog at church. I man shift from this blog to the Summit Blog. There are many thoughts and reflections rambling around my empty head. Putting these on paper, or virtual paper, helps me organize the random. If you are up for a continual Pastor's Blogg, please let me know.
Blessings,
PA

Sunday, August 10, 2008

Sunday, at home

All,
Sick guy again.
It is almost my bed time. Please forgive me for not sending a note today. We got to spend some time with Jordan this afternoon, and a friend from Guntersville came by.
Pre-season football is on. When did we get into August?!?! I am really behind.
Right now i am watching a bit of NFL history in the making. Bret Favre (whom i met at USM in 1989) is now playing for the New York Jets. Since 1992 he has been the starting QB for the Green Bay Packers. He retired last year and wanted to come back for another season. Who cam blame him? He is being paid almost $13 million for about 16 weeks of play. All that being said; tonight he is on the side line. He isn't even in uniform. He is just standing there talking to his new team mates.
The sidelines are a hard place to be when you are used to playing the game. Soon Bret will make his way into the uniform and the game. So will your pastor. Favre may make is NY start before I make my return, but don't bet against me yet. I will see you soon.
Tomorrow our children will be starting school. Please join me in praying for them as they make their way down strange halls, meet new teachers, learn new routines, and make new friends. These are great and dangerous days. Let us join our hearts in prayer for every teacher and every child and every administrator. These are our responsibility. Let us take them seriously.
Blessings,
PA

Saturday, August 9, 2008

Saturday, day 4

All,
Sick guy again.
I have held out hope that we could be with you for at least a short period tomorrow at church. It is now 4:01 (that is 1601 for military, the short hand is on the 4 and the long hand is just past the 12 for the guys in youth ministry) and hope is pretty much gone. A walk into the back yard and the day long hike back, has pretty well ended my hopes of being with you in the morning. We will regroup and make a plan for next Sunday.
It will be most unusual to be home on Sunday morning. I will be praying for Lee as he preaches and for the church family as they hear and hopefully worship.
Next week i may post some Theology. That is both a disclaimer and a warning. God has put some things on my heart that I want to share. Beyond that, God has confirmed some things that He had burdened me with weeks before surgery. I am anxious to share and get your reflections.
Thanks again for the prayers and love.
Blessings,
PA

Friday, August 8, 2008

Friday evening

Sweet friends,
It is so good to be home. And to come home to a clean home, beautiful flowers, fresh cut lawn and a full fridge - wow - how do i say thank you!! You have blessed us so wonderfully during this time. I have laughed, remembered, cried and rejoiced at your post during this most difficult time. You have touched my soul. Many of you have heard me say that i have a 'low people need.' During the last 25 days i have learned, maybe my need is greater than i had thought!! I do not know how i would have survived the last month with out you all. To be able to share my intimate hurts, fears, praises and request and know that i could trust you to take them to the throne, how would i have made it without you all? Thank you for helping me carry this load. I know there were some special prayers going up on our way home - cause driving is not 'my spiritual gift!!'

I want to have a big party and you all get to know one another - but you know that is what heaven will be - i will just have to wait!! You folks really need to know all the wonderful people i am blessed to know. There are so many you did not get to hear from because they emailed me personally that they were reading the blog and did not post or sent a card and said the same. You truly only got to know a few of the truly wonderful people that have touched my life. I know God's choicest saints.
Of ALL i am truly most blessed.

Thank you for blessing me

nise

P.S. PA says he can't go to sleep without a knock - knock joke!!! The last one made him sleep all night. Not to put any pressure on . . .

day 3

All,
Sick guy again.
I guess i thought i would just come home and jump right back into doing all the stuff i did when i was last here. Boy, was i wrong?!
We had to go to Kennestone today for blood work. I couldn't even make it back to the car. Denise had to drive around the garage and get me. This afternoon we went to a local restaurant for dinner. After collapsing into the booth, and eating half my meal, i collapsed back into the car and was helped into my recliner.
The fatigue is overwhelming.
Did i mention that my bladder is still AWOL.
Missing you all,
PA

Thursday, August 7, 2008

day 2 of my new life

All,
Sick guy here.
Doctor visit was both wonderful and painful. The painful part was right before and after I failed the test...............again. Mr. Foley and i are going be long term partners. I go back next Wednesday for another test. I will study much harder this week. We are not going to press the "Panic" button until then. If another failure comes, they we have to look at some less than desirable alternatives.
The wonderful part was the doc. Dr. Rutland was fantastic! We shared our faith with each other and he asked to pray for me before he left the room. In his prayer he said,"Lord Jesus, do what only you can do; heal this man." That wasn't all of the prayer, but that is what touched these ears. A physician who acknowledges that healing is in the hand of God and not man. I am in debt to Henry Head for recommending him. And by the way; so do I!!
After the visit to the doc, we went by the church to speak to the heroes of Summit. Please let all of them know what a great job they are doing.
Lee is preaching a very special sermon this Sunday. Trust me, you don't want to miss this. Please make every effort possible to come. If you have unchurched friends, this will be the perfect Sunday to bring them. You will just have to trust me on this one. Pray for Lee as he prepares for Sunday.
We will be seeing you soon!
The Vertical
Pastor Aaron

Wednesday, August 6, 2008

Day: The first of the rest of my life

All,
The Eagles have landed. The Johnsons are home.
Denise drove all the way from St. Pete. That is just over five hundred miles and a new record for her. I sat in the passenger's seat and said not a word. That is just over five hundred miles and a new record for me! She drove beautifully.
We came in just a few moments ago, maybe 7:45 or so. It is a certain bet that we have never been this exhausted. I can't help empty the car, and Denise doesn't have the strength. It will wait until tomorrow.
I have an appointment with a Urologist in the morning at 10. A prayer or two at about 10:30 will be most welcomed!
I am just too worn to type. More thanks and love.
PA

day 21.4 Post: FINAL FROM HOSPITAL

All,
Sick guy is headed home!
I would not have survived without your prayers and the care of my bride.
A debtor to all,
PA

Day 21 Post I

All,
Sick guy again.
The nurse came in a moment ago and asked if I were to go home today. I said, "Absolutely!"
Right now i am waiting on 3 different doctors to come by and wave their wands of approval for my discharge. While it could still fail, I really "feel" like i am coming home! That is a pretty sweet word right there....home.
Right now i can't tell you the date, day of the week, and I am not completely certain about the month. Things will be normal when i get back to church. That is home.
Thanks for the prayers you have prayed. They have sent Holy Spirit power, strength, and healing to this worn out old body.
If i post again, it will be merely to confirm my discharge, or confirm my delay. The only thing that i can think of that will delay my discharge is if the infection has spread to the blood. I really feel too good for that. So, i plan on being in the 30102 zip code by mid-night.
Blessings and Thanks,
PA

Tuesday, August 5, 2008

Day whatever post whatever

All,
sick guy with poor computer skills here.
I don't know what i did, but i published before i was ready. So, please read the one below first, then this one.
! tomorrow is going to be completely unique. We are driving home. We will have to stop every two hours for my system. At that rate, we should be home some time near the end of August. No, i plan to sleep in our own bed in Acworth, GA tomorrow night. I will be seeing many of you very soon.
Thanks for making this dark valley navigable.
Blessings,
PA

day 20.75 Post III

All,
Sick guy again.
Well, can it be? All systems are go for discharge tomorrow morning. That is except for the bladder and that system just won't go.
As i sit here in relative comfort i am waxing reflective. These past 22 days have been almost unbearable. The pain, nausea, the random and unusual abdominal pain, overwhelming weakness, and all the indescribable discomfort, have now passed. Now i shift to a learning curve for the future.
Your postings, cards, and most of all your prayers, have kept us going. I was asking for Dr. Kavorkian this time yesterday. Your prayers kept even him away.
A dear friend and physician, John Boggess, told me that in 2001 the University of Oklahoma football team took part in an experiment. When the football season ended, team members volunteered to be hospitalized for a week. They were fed all they wanted. The only restrictions were that they had to remain in bed or sitting in the chair. They were restricted from any form of exercise. The result was startling. These were elite athletes in prime health at the peek of performance. After only one week they lost an average of 40% of their pre-hospital strength. I was neither an elite athlete nor in prime physical condition before coming here. However, i too lost about 40% of my physical strength..............after the first week. Tomorrow will be three weeks. I guess that means that i have 20% less than none. Lane, can percentages be negative? I don't think so.
During the last three weeks i am afraid that i have become a little old man who walks around with a bag. I was never good enough for public display, but it will be a while before i will be back to where i was when last you saw me. So, don't expect too much when you see me

Day 20. 5 12:55 p.m.

Hey all,
not as sick guy's - sidekick,
We have spoken to the Doc this morn - Aaron definitely has a bladder infection and all indications has poutchitus. YUK! He was terribly dehydrated, again - due to the poutchitus. Yesterday he was so nauseous he could not eat or drink and got really behind on his fluid intake. He is on an IV still, is getting his 2nd bag of Cipro and feels much much better. He is off suction again - eating and intubating. Which went well. They are doing lab work to be sure the infection has not made it to his blood stream. He is so much better that i really don't think it has. Yesterday i would have said different!! That is why i sent the call out to pray - antibiotics are really good - but coupled with prayer - that can't be beat!! Thank you for praying - we needed it once again. We are so in your debt in that department - although i must say "some" of you guys i have heard from have been the recipient of a lot of praying in days past!
Word is if infection has not made it to the blood and everything continues to progress - we will get to flee this 'paradise' (i use that term so loosely) tomorrow!! He will come home with the cath and immediately be under the care of a urologist there. He still has a long road to complete recovery, as all keep saying here, "you have had MAJOR abdominal surgery - be patient with yourself." So i ask that you be patient as he recovers once we get home. He will be so anxious to 'get back in the swing' it will be hard to take it slow. I am counting on all you guys to help him take it slow.

Thank you again
love ya bunches

nise

Day 20.1 Post I

All,
Sick guy here.
I live!!! Not much to brag about, but today i will be able to get out of bed. That is significantly more than i could do yesterday. Yesterday was simply miserable. The two times i got out out of bed (1:20am & 4:00am) i almost passed out. Just too sick to function on any level.
The truth is I wanted to call Greg Spry to come get me! For those of you who don't know Greg, he owns and runs the most professional funeral home I have ever worked with. He is keeping up with my blog to see if i take a turn for the worse. He is actually looking for business.
Greg, remember the day you and I both showed up at Jimmy Smith's at the same time? Everybody was in a state of panic! The Pastor and the funeral director showing up at the same time is never good!
Anyway, today has started much better. Yesterday i was too sick to eat. Today i have have enjoyed toast and powdered eggs.
The plan is to discharge me tomorrow unless something like yesterday happens. I can't wait to sleep in my own bed.
Our primary concern is the bladder. As things are right now, if my bladder doesn't improve by tomorrow, they will send me home with the Foley. This is going to make for some very awkward stops on the road.
But i am alive, my systems are up and running, and Denise is by my side. Therefore, what have i to complain about?
And Terry, yes, I remember the rock. And i still laugh about it! Your turn is coming.
Thanks for all the many prayers.
Love and Blessings,
PA

Monday, August 4, 2008

Day 19 5:45 p.m.

Dear Friends,
I am coming to you again in need of prayer. You have been our intercessors and have done such a wonderful job. Yesterday this time we were down to one tube and the promise of the G tube being taken out today. And the full hope we would be on our way home this time tomorrow. Now we are back up to four tubes and don't know for how long. Today has been misery. After a wonderful day - last night everything went south. They really don't have an answer except, 'it sometimes happens, your body just wasn't ready, and it said slow down.' He has been started on the meds for poutchitus (i really don't even know how to spell that let alone completely understand what it is). We have not heard from the urine culture - so it is just wait and see now. At least he has gotten relief. He is back on suction from his stomach and pouch.
I have no answer for why bad things happen to good people other than to say satan is alive and well and active. He is roaming this earth seeking whom he may destroy and if he can cause us to question or doubt or get angry, he has done his job. God has been praised so faithfully through this process that i know satan noticed. When he notices he acts. And as Leigh said so eloquently, ' i can't stand him!'

in His Faithful Name,

nise

Day 19 11:10 a.m.

Dear ones,
I must confess it is so much easier to post when i have great praises and gets more difficult when it seems we back up a little. Leon and Russ thank you for the Word - i so needed that this morning. I know God is faithful, i know He will deliver, i know He will sustain until He chooses to deliver . . . and if not . . . He is still God, He is still good, and i will serve and praise Him.
Aaron did not have a very good night last night. As we reported earlier the cath was reinserted about 8:00 p.m. - that gave some relief. His intubation went very well until midnight. He was supposed to not intubate again until 4:00 a.m. after the midnight intubation. But he 'irrigated' a new addition, at the midnight intubation and got terribly nauseous and went down hill from there. He had meds for nausea and slept until about six - but just can't recover. They are starting IV fluid again, because he can't drink enough because of the nausea and they don't want him dehydrating again. It is possible he has a bladder infection again. They are going to culture to determine. You know a hospital is not the place to get well. Enid you were right!!!
We had such a good day yesterday - the two hour pass was a blessing and i will remember and be thankful for that.

For those that do not know about Denae and Jordan. Here goes. . . Jordan graduated high school this spring and moved back to Athens, Alabama. He is working for a very good friend there and starting school at Calhoun in the fall. He is 6'3' 230 lbs and has a beautiful smile like his dad! Denae is married. Lives in NewPort News, VA with her husband Timothy. He is in the military and spent the last year in Kuwait. Got home in June. They are doing very well. Denae is in school there and is as beautiful as ever and very happy!! I only wish they were closer - but they live in a wonderful area!! She just got a job as a life guard at Ft. Eustis - the post Timothy is stationed.
As i have said before enjoy your children - they grow up and are gone way toooooo fast.
thanks for all the memories - it has been - and will continue to be - a good ride . . .

nise

Sunday, August 3, 2008

Day 18 11:35 p.m.

Yes we are still up!! and Aaron is not a pumpkin! We are awaiting the last intubation for the night - and the Lord continues to bless. The nurse just came in and said you have a phone call. It was Peggy, the nurse we told you about. She is in Boston with her mom that is probably dieing. She called to check on Aaron and to say, 'don't worry, it's gonna be ok.'

Thank you for holding me up when i falter,

nise

P.S. i publish my post, realize there is another post and i read B.J.'s words - you made him smile, thank you!! - but he said, "we don't need to tell everything we know - love you man!"

Day 18 8:45 p.m.

Dear prayer warriers,
Back on that roller coaster . . .
The urologist just left it was not a 'good news' visit. Aaron's residual was over 900 when they checked his bladder - Doc says damage is potentially being done to the bladder so he strongly insisted the catheter be replaced. The nurse just put it back, after pain meds, Aaron is getting easier. Please continue to pray for things to fully wake up. For some reason the bladder is just not cooperating. Doc does not 'think' this will delay 'possible' dismissal Tues. He will just have to immediately find a urologist in Atlanta.
It is really hard to not be disappointed things have gone so well today with the intebating. Once again i just don't understand. . . i hate to see him hurt.

good nite
nise

day 18.75 Post III

To the Saints:
It has been an eventful day here. I am coming up on 10 hours in control of my new system. We were given a 2 hour pass this afernoon! We were back in an hour and twenty minutes. We went to a restaurant and had dinner. It was an uncomfortable delight.
Right now my only real problem is an uncooperative bladder. For some reason that no body knows, it just won't do what it is supposed to. I now have serveral organs fighting for the same volume of space. This is living proof that man has yet to imporve on what God has done.
Please don't stop praying.
If things go according to the schedule, i should be discharged on Tuesday morning. That will be one day early. However, if my bladder remains uncooperative, I will have to wait.
Thanks for all the posts and jokes, prayers and thoughts, poems and encouragement. We are both in your debt.
PA & Nise

day 18.5 post II

All,
Success! A very weird, unusual, abnormal, unique, bazaar, indescribable, success.
PA

day 18.1 Post I

All,
As a child we played a game called "hide and seek." One person was the seeker while all others found places to hide. The seeker or the "it" had to cover his eyes and count to some predetermined number. When the seeker finished the counting, he said, "Ready or not, here I come!"
That is how i feel this morning. About fifteen minutes ago the pouch drain was removed. For the first time in these 18 days, there is no drone of a vacuum machine keeping my pouch empty. In another hour and 19 minutes I will make my first attempt to self-intubate. Ready or not, here we go.
It has just begun to sink in that my life is now forever changed. There will never be a return to normalcy. My new normalcy will be abnormalcy. From now own, every food will be an experiment with a new system. The first day of my new life is today.
The stomach tube will be removed tomorrow if i do well today with intubation. The IV will be removed in a few minutes. My high priced bindings will be gone. Then we begin to learn how to live all over again.
If i do well today; and if can succeed in the intubation process; and can repeat it every two hours for 48 hours, then i will be good to be discharged........ready or not.
Blessings,
PA

Saturday, August 2, 2008

Day 17 - 3:10 p.m.

Hey all,
Sorry to be so late posting today. We have had wonderful company visiting with us today. A former student from the youth ministry days in Boaz, 19 years ago, who lives close to St. Pete now, Kylie. And some 'crazos ' from Summit (i say that with much love and affection) 'Crazos' because they drove down yesterday - - 9 hours - - and have just left to drive 9 hours back. They visited with us this morning, insisted on taking me to lunch, and have now left! Please pray for for my very, very good friends (crazos) traveling back to Atlanta.
Aaron is still very sore from yesterday's procedure. Aaron asked the doctor this morning how such a small guy could hurt him so much. (Of course he had to knock him out to do it. haha!! ) He got the penrose drain out this morning - two more drains to go and the IV. (which they had to restart yesterday due to dehydration). If things continue to progress, he will self intebate tomorrow! This will be an interesting process to say the least. If all goes well with that they will remove the G tube and the suction from his pouch and maybe we will get to leave one day early!!!!!! Provided there are no set backs - bladder has to be fully functioning - no dehydration and intebation process going smothly. We still have a few hurdles but not nearly as many as - - - yesterday!!
It is your prayers, kind- kind words, cards and messages that have made this journey
'do-able'. Thank you seems so inadequate to express my heart.
Please know we love each and every one of you. This experience has reminded me of the 'last' time we traveled this road - very different but in some ways the same. As people came into the hospital (almost 100) to be with me during Aaron's last surgery - each person who came in i felt was my best friend. Thank you for loving me and my sweet so well. Summit through this journey you have only added to the list of 'my best friends'. . .

nise

Friday, August 1, 2008

Day 16 IIa - 3:15 p.m.

Just wanted to pass on a good word. Aaron is back in the room everything went well. He is starving!!
Also just saw Beth's dad - she is going home!!! today!

thanks
nise

Day 16 part II - nise

Friends,

Yes ma'am, tried them ALL. Think the only one that had any possible bearing was the damp heat, to the tummy. Poured water from the coffee maker, so it was more like 'hot", on bath clothes put them in plastic bags and placed them on his tummy (with a towel between to protect the skin). One of the nurses, Nuri, suggested that yesterday. That may have helped, 'cause things are flowing easier now. Hand in hot water, standing in hot water, water running, shower - no affect. . . thanks for the suggestions we have tried all suggested! Really!!!
Did you ever think your pastors wife would be giving tips on how to 'potty'? I sure didn't!!!
I have to say as hard as the last 16 days have been you would be so proud of your pastor. I am. He has impacted the lives of folks here in ways that will last for eternity. He melted the heart of a 3rd shift nurse named Peggy, a 20 year veteran, who 'calls' to check on him when she is off. I think we both have another Mom. (she likes me ok too). We have made friends here that we will carry with us the rest of our lives. When this started this was one area of the country we did not have 'family'. Now this is home too. God really always knows what He is doing. I learn over and over again, 'what satan means for harm, my Father will use for good.' I have to echo Aaron's post . . . Praise God from whom ALL blessing flow. . .

Thank you for lovn' us like we love you,

nise

Day 16.1 post I

All,
Sick guy again. DOXOLOGY!!!
Many of you may not know the Doxology, so here it is:
Praise God from whom all blessing flow,
Praise Him all creatures here below.
Praise Him above ye heavenly host.
Praise Father, Son, and Holy Ghost.
AMEN

Things here seem to be coming on line after a 16 day vacation. Actually it was more like the system went AWOL. Regardless, the return is more welcome than you can imagine.

We are facing a bit of a set-back today. For the first time in many days, I am having a bout of nausea. They think i am dehydrated and in need of fluids. One of the four lines in my "main-line" is clogged. They fear an infection and want to remove it. My veins are a wreck from the months of chemo five years ago and they must have a line. It looks like I will head back to surgery today for removal and replacement of the line. The line is located on my upper right chest. The line is deep into my sub-clavian vein. This is not a procedure you want to be awake for.

Denise will let you know the outcome.

Thanks for all your love and prayers. I am a debtor to the world.
Blessings,
PA

Thursday, July 31, 2008

day 15.75 post II

All,
This is the sick guy again. Don't mean to bore you, but i want to share something special.
Many of you don't know that i am a fan of poetry. My primary recreational reading is English Lit. Sorry, i am just a boring guy.
Anyway, while i was in surgery my precious daughter had the idea to have each person write a phrase from one of my favorite poems in their own script. She then took the single sheet complete with the poem in 8 different scripts, framed in between two sheets of glass in a handsome frame. I have read it over and over.
I'd like to share it with you with the understanding that this verse just means a lot to me. It isn't Scripture and the basic thesis can be debated. However, please read it and let the power of the words sink in. It was written by Rudyard Kipling and goes like this:

If you can keep your head when all about you are losing theirs and blaming it on you;
If you can trust yourself when all men doubt you. But make allowance for their doubting too;
If you can wait and not be tired by waiting, or being lied about, don't deal in lies, or being hated don't give way to hating, and don't look too good, nor talk too wise;

If you can dream and not make dreams you master,
If you can think and not make thoughts your aim;
If you can meet with triumph and disaster. And treat those two impostors the same;
If you can bear to hear the truth you've spoken, twisted by knaves to make a truth for fools, or watch the things you have given your life to broken, and stoop and build 'em up with worn out tools;

If you can make one heap of all your winnings and risk it on one turn of pitch-and-toss,
and lose, and start again at your beginnings and never breath a word about your loss;
If you can force your heart and nerve and sinew to serve your turn long after they are gone,
And so hold on when there is nothing in you except the will which says to them, "Hold on";

If you can talk with crowds and keep your virtue, or walk with kings-nor loose the common touch;
If neither foes nor loving friends can hurt you;
If all men count with you, but none too much;
If you can fill the unforgiving minute with sixty seconds' worth of distance run-
Yours is the Earth and everything that's in it,
And - which is more...............you'll be a man my son!

post op day 15.5 post II

All,
Today has been good physically. We are still in a delima over the uncooperative bladder. It will work when God wills it to work. Until then we wait.

About an hour ago the mail person came by our room. This time it took three people and a cart. Among all the special deliveries were a few that brought us both to tears.
The McQuade family sent two boxes of boxes. The McQuade children sent a very special care package for me on my mission trip to the hospital. They used their own "God Money" to purchase a number of stuffed toys. They made get well cards and asked me to hand them and the toys out to others while i was here. WOW. The other box contained a "foot washing" for my bride! Never have i seen her so moved. She wept. They also included a gift for our new friend Beth. We took her the gift as soon as we received it. It was the first time i had seen her walking.

The Templeton box held all sorts of goodies. Among the treasures therein were two pictures of modern day super heroes. I am not sure if i can post the names, but in real life they are Noah and Nicholas. They also included a Hot Wheel. Not just any hot wheel now, it was a '69 GTO convertible! Now that is what i am talking about!

Thanks to the Perez family Denise has all she needs for a candle lit dinner will all the accoutrements.

Jimmy came by today and brought a bundle of cards. I enjoyed our visit and the report from Ukraine.

Folks, you have blessed us beyond our ability to receive. Thanks for everything.

We feel a lot of love here..............................except from the folks in the mail room.

Blessings
PA & NISE

post op day 15 post I

All,
Sick guy here.
I feel better than James Brown! The bladder is still weak, but I really feel great.
Here is the run down again: 50 staples - gone; 1 drain tube - gone; shots in my stomach - gone (i was having one each day); IV - gone; connection to the "G" tube - gone; treatment for Thrash - gone; O2 - gone; dignity -gone!
All that awaits my return to my new normalcy is: removal of "G" tube from stomach; removal of Penrose drain in lower abdomen; removal of pouch drain; an awakening of the bladder; learning to self-intubate and the removal of the last shred of modesty & dignity.
So as you can see, i am almost home.

Enough about me; how about you guys!?! You have all been champs for Denise and me. We check this thing many times each day and are moved by the postings. The knock-knock jokes from the Traylors are a special delight. Brad, the quote was from Bear Bryant. (For those who don't know who Bear Bryant was: he was a football coach at Alabama.....before most of you were born.)
Sadie, your post lifted my spirits and touched my heart. Sadie has shown such grace though over five years of fighting with cancer. Sadie Roberts is my hero! Thank you for your example of grace in the valley.

One of my hopes of Heaven is the fact that then you will all know each other. I just can't wait for you guys to meet in Glory! Won't it be wonderful to see the lives that we have touched? Your posts mean that my life has meant something. I have to admit, in ministry you often wonder if your words, ministry, or even your life is making any difference to anybody. Seeing a post from my kids, now in ministry is a powerful reminder that no gesture goes without reward.

I haven't preached in three weeks and i feel one coming on! I must close for now. Nurse Cratchett is on the hall and she heard that i ate a cracker 8 hours early. Thanks for the notes, prayers, jokes, and mostly for loving the Johnsons. We love you all, and there is not one thing you can do about it.

Blessings,
PA & Nise

Wednesday, July 30, 2008

Post Op day 14.5 post II

All,
I must be better since i am typing on a computer for the second time today.
Today has been a day of bickering with my bladder. You never think about that thing until something goes wrong with it. It still doesn't want to render me full support. Rather, it is a solid "D" student. It does as little as possible to get by.
On the up side; i am now staple free, and my IV was removed earlier this afternoon. This leaves me with only one umbilical still holding me to my room and bed. I can remove it as often as i like and walk as much as i feel able. For the first time in 16 days, Denise walked down the hall hand in hand, well, arm in arm, or more truthfully her under my arm.
I seem to be ahead of the curve in regard to how i feel in general and i know i am well ahead in the pain department. It is a sure bet that i feel better than i look. Of course that is always the case.
Until tomorrow, thanks again for all your prayer support, blogs, cards, and well wishes. You have moved me more than you can know.
Blessings,
PA

14th day post-op

All,
This is sick guy again.
This morning i feel well. We are still in a tug of war with my stingy bladder. Every ounce it gives is painfully hard fought. We really need this apparatus to be a great deal more generous.
All your posts are thrilling. I love the new names and i have to chuckle to think that we are filling cyber space with ramblings about such. A nurse told us that when one of her patience left the hospital her son and husband came to pick her up wearing tee shirts that prominently displayed, "I love my front-dumper." Like the great Theologian, Forrest Gump said, "That's all i have to say about that."

Now for the word:
The prophet Joel records a promise from God that is so useful in these barren seasons of life. God tells Joel to tell the people, after the flying Locust and swarming Locust have come and the crops are all gone and there is no wealth or provision, "I will restore unto you the years the Locust have eaten." Wow, what a Savior.
I don't understand why God has chosen for me to be sick for so long with such a serious condition. Maybe i have a lesson to learn. If that is the case, then pray that i hit that learning curve pretty quickly. I am running out of organs.
Or perhaps it is like Paul and the scars foster humility.
Or maybe somebody needs to see someone else walk through the valley for an example in the flesh.
Or maybe He just knew I could be faithful with the opportunity.
Regardless, I am here. The greatest prayer you can pray is not for my healing, though that is certainly appreciated. Your greatest prayer for this Pastor is that he not miss the blessing or waste his sorrows.
I am convinced that He is able to keep all i have given Him safe until that day of His revealing. These are days to give Him more and hold to less.
And ultimately I know, He will restore the years the Locust have eaten!
I will take physical pain over the grief of sorrow every day of the week and twice on Sunday! My problems are just physical. Praise be to the one who can raise this body and restore the years the Locust have eaten.
Love you all,
PA

I really should not divulge information about Beth so if you would like to send her a card you might send to us and we will get it to her. Her family is most grateful for the prayers, thank you!

Tuesday, July 29, 2008

Hey,
This is the sick guy again.
Today has not been a good day. While the on board liquid exhaust holding tank, with built in system redundancy, has begun to work; it has not been without substantial pain. Today i took a pain shot, the first since the day after surgery.
That means that tomorrow i should be as good as new. When this bump is behind us we will have merely to await healing and learn how to use my new system.
We have been trying to come up with some means of referring to my new system. What do you think about "anterior waste elimination system?"
Did i say that i had a pain shot? Maybe i need to keep still and quiet and let my infinitely better half keep informing you.
Regardless, the healing process should now be full speed ahead. I have asked about leaving a little early and there is a possibility that i might get out 2-3 DAYS early. Of course that will require a flawless reentry from this point on. The nurses tell me that the wicked nurse has been on vacation and will return tomorrow. The rumor is that she is strictly by the book. That will eliminate any chance of time off for good behavior.
Thanks for all your prayers. They have sustained us for these fifteen, overwhelmingly difficult, days.
We have another praise! Yesterday Denise shared about a young lady here. Her name is Beth. yesterday the outlook was grim. They took her for emergency surgery last night and due to a chemical reaction, they could not do the surgery. Today they made another attempt. To the surprise of the Doc and the praise of God, she simply no long needs the surgery! Beyond reason and knowledge is the power of prayer. Thank you for praying for Beth.
Blessings and love,
PA

End of day 12 - a praise

Friends,
Thank you for praying!! we have had success!! kinda . . . his bladder has acted but it has been a most painful day. I suppose because the bladder has had such a hard time waking that it is still going too slow. He actually had to have a pain shot this afternoon the first since the day after surgery. He has also pushed his button several times. He is resting now - easy. Please pray that things continue to progress - there is a standing order to replace the catheter should he continue to have difficulty. We do not want that to happen. It is so hard to watch him hurt.
I have so enjoyed reading - singing the hymns that you all have posted. Probably no one 'enjoys' praise chorus' more than me - but you just can't beat those old hymns. We tend to not like to think about our sin problem, and how it took a lot of perfect blood to cover it. It is so much more pleasant to sing "He's got the whole world in His hand's . . ." I am not being critical it just makes it all seem so much more pleasant - than, say . . . "Washed in the Blood.'" . . . And Calvary was not very pleasant . . . I think maybe if we are reminded of the cost of our Salvation regularly and the just how Holy the God we serve is, and that He knows just how much our salvation cost . . . we might live a little differently. . . guess i'm preachn' now - or medlin . . .



nise

Monday, July 28, 2008

Day 12 - 7:30 a.m.

Friends,
Good morning and it is a good morning! We were up early, have already had a 'bath' i use that term 'loosely', but i will say the bath room floor is clean when we are done. Haha!!

Jamil, one of our favorite nurses, he works nights, took the catheter out this morning. So we, or i should say Aaron's bladder, is on the clock again. So once again i ask for prayer for his bladder. Doc said last night labs show no sign of infection, but it will be today before we know about the culture. We will let you know.
By six o'clock this morning Aaron's tummy had that 'hole' in it and breakfast doesn't come till about 7:30 a.m. So Lori you will be proud to know i got outside this morning; to make an early run for breakfast!! McDonald's is just down the road! yum, yum!!
Please pray things kick in soon!!! We do not like the options!!
Have a great day!!

nise

End of day 11

Hello again,
Aaron got the rest of his staples out - we did not count this time but there were at least 25. He also got to eat - - - - - yeah - - - - - and kept it ---------- all. woo hoo!!! the G tube is still clamped and things are progressing without nausea!!!! He had an 'upset tummy' after eating but no nausea. Considering his tummy has had no solid food in 14 days that is pretty good!! He did not eat a hamburger - decided to wait until tomorrow. Did not want to 'chance' the perfect food!! We have not seen the urologist or Dr. Garcia yet so we still don't know anything about the bladder. Don't think they know what to do - things are just supposed to work when you remove the catheter - and when it doesn't, well, - - - that is why they call it 'practicing' medicine. . . . catheter is still in so will probably be in till at least the morning. yuck!!
Daniel and Caleb have we told you how much it hurts to laugh? Aaron found out tonight. Great joke!!! Thanks for 'doctorin' us in such a 'real' way - as they say laughter is the best medicine!!
To all of you have sent word that you are reading the blog but can't post - don't worry about it - - i probably couldn't figure it out either. . . but thanks for caring so much that you try! Your cards are amazing. I started putting them up in the room - but there isn't nearly enough room. Hallmark loves the Johnson's!!! Thank you, thank you, thank you.
I have a special request that is not for us. There is a young lady down the hall - 36 yrs old that i mentioned earlier in a post. Her name is Beth. She has been here 2 mos. and is in emergency surgery right now to 'rebuild' her pouch for the 4th time. Due to disease in her body her first pouch failed, her second pouch was destroyed in a car accident the third pouch just did not work - so they are trying again. She has been sick since she was 16 years old. She is a very, very sick lady. Her family are strong believers but stand in need of some intercession. You guys are the best i know. So please pray on . . .

In Him,

nise

12:05 p.m. Monday the 28th

Hey guys,
Quick post - we just had 'mail call' actually for the 2nd time today - and this huge 'card' was brought in ???!!!??? along with another stack of regular sized cards, - - a beautiful rainbow was drawn on the back and many stickers decorated the 'envelope'. As i used Aaron's knife - yes i actually used the knife - some will understand - to open the envelope - a beautiful card chucked full of beautiful messages, came into view. Aaron is lying in bed with colorful lie's adorning his neck reading the messages! with that beautiful smile shining brightly!!!! thank you for including us in VBS at Summit!! As we said before we left this is the first VBS either have missed in our lives. I brought my camera but forgot to bring the cable to connect to the computer or i would send you a picture. My description will have to do till i can show you the picture!! thank you, thank you, thank you!!!
nise

Day 12 10:00 a.m.

Good morn' friends,
Sleep is good!! Aaron is resting better - with a little 'aid' at night. Yeah!!
We are waiting now for the Urologist to make a visit and make a decision about the catheter. We do not have the results from the urine culture, but they did go ahead and start an antibiotic - to get a jump start just in case. Thanks for all the prayers i can say i have a peace that i did not have when Dr. Garcia first told us of the possible infection. God is good. . .
Aaron is eating - about every two hours he gets a 'hole' in his gut (his words) that says, "feed me"! So i got some soup in a cup and warm that when it hits. He is handling it well. The nurses keep warning him to not go too fast. He is on a limited 'real food' diet today. If he thinks he can eat it he can try - within limits. So i will be making a burger run shortly!! woo hoo!!
As Joseph was mentioned in one of the post i have to reflect, for that is my favorite story from the Old Testament. It would be hard to find a better story to explain the heart of God. (and i need this reminder again) . . . This story has absolutely nothing to do with dreaming. This is a beautiful story of God having a plan!! and yes it was a very good plan - but i am sure Joseph wasn't so sure about that, a lot of the time! God is interested in my holiness not my happiness. Only through holiness am i truly happy, and He knows this. God is a God of the big picture. He knew what had to be done to provide for the future of His people. He knows what has to be done to prepare ME for the plan He has for me. He KNOWS the future i do not!! The truly great news is that He is right here with me to carry me through the times that i do not understand, He always makes a peaceful way even in the storms, if i will only rest in Him. Thank you for allowing yourselves to be used to make this way easier and bearable. . .

till later,

nise

Sunday, July 27, 2008

11:15 p.m. 11th day

It is late. My bed time is 10 pm sharp. But then, what is time when you are in the hospital? it isn't like i have a pressing appointment tomorrow.
Permit me two reflections before i pursue sleep.

The first is a thought on perspective.
Through this blog, you have been given an insider's perspective of our pathway. You have read the words and prayed and i am moved, honored, humbled, and healed by your prayers. Thank you. Now here comes the perspective part. Right now it really doesn't matter very much who wins the iron bowl, the sec title, or the super bowl. Right now i really just want to feel well enough to be on the parking team when i get home. You just can't know what a thrill it would be to be able to walk those wooden steps up to the upper parking lot, to be able to stand in the heat and direct cars, or just to stand for a few minutes. I would be thrilled just be able to serve in any way. Even if it is as a poor example! Russ, there is nothing more important than the parking team and i even have the shirt.

The second reflections is on the saints on the list of bloggers.
Guys we have something in common! On this and through your notes, i have been touched by a class mate from high school, whom i have not seen in 30 years. Another class mate posted and I haven't seen her since leaving Guntersville. I have read die-hard Bama fans write War Eagle, a principle misspell a word, an engineer get misty eyed, children threaten to hug my wife and rub it in my face, and well, you have read them. I just wish you could all know each other..........On these posts are attached some of the most important people in my life. One of the bloggers is perhaps the smartest man i know (i will let you all wonder who). Another is a published and vastly well traveled author and missionary. Another is perhaps the most Godly man i have ever known and the one who impacted my life more than anyone else when i was a teen. I am in ministry today because of him. Still another is a life long friend who called me to be his youth minister 25 years ago. Another is a brother whom i met on a flight from Huntsville to Atlanta several years ago and we haven't seen each other since. I am so grateful to God for each one of you. Thank you for writing.
What we have in common is our relationship in Christ AND the fact that in days gone by I have prayed for each one! Oh how i wish you could see the collection of hurts and hopes we all are! I just can't tell you which of these has survived breast cancer, or which one waited for months as his child lay in intensive care fighting for life..TWICE. Which ONES have known the pain of loosing a child. Which ones have a wayward child. And i have had the joy of lifting each of you in passionate prayers over the years! This is just too good to sleep on......
And here we share common ground. We are simply children, trusting a loving Daddy....by the way, the post about kissing the "gorgillia" is from my daughter and she calls me Daddy.
The truth is, our shared faith, pain and dependence is all that ties us to humanity.
SO, let me tell you that your life is urgent! You exist for the purpose of joining in this family of hurting and healing and making a difference. Whose life have you touched today? You have certainly touched ours.
Thank you for all the examples of faith under pressure!
OK...I have started preaching.
Good night dear Friends, good night, good night.

Special request

Friends,
Here we go on that roller coaster again. Dr. Garcia - the internist that has been seeing Aaron just came in and dropped a bit of a bomb. Yesterday he had told us there was not a bladder infection, he just told us - that as they have let the culture grow there is indication of a possible staph infection in the bladder. The white blood cells are not elevated and they should be, so there is the possiblity that it is a 'false' reading. They are doing another culture and will know more tomorrow. After they get the specimen to test they will most likely go ahead and start an antibotic to get a jump start just in case it is staph. We don't need staph. Please pray.

nise

Day 11 - 11:30 a.m.

Hey guys,
Aaron posted this morning so i did not get to! So here i am.
Today's lesson is on , "The first shall be last . . .
No - not really . . . i had some good news i wanted to pass on. They just removed 25 staples from Aaron's tummy, 1/2 of the total and his tummy looks really good. They also took out 3-4 stitches and his JP drain. That thing was a pain in the fanny! Really!! His G tube is clamped and his tummy feels pretty darn good. He has had some soup and a couple of peanut butter crackers. Those weren't on the diet but he was hungry!! Dr. Rehnke said," go for it. All it can do is make you sick." Real comforting!!
So far he feels good.
The next really big hurdle is the catheter. Aaron believes that as his tummy and other things come 'on-line' his bladder will follow. That is our prayer!
Most of you know Aaron and i had the blessing of spending a month together traveling before coming down here for the surgery. (any time you want to see the pics just let me know) We had such a great time!! In one month we swam in the Atlantic, Gulf of Mexico and the Pacific. Well did not swim in the Pacific - way TOOOOO cold. Also that sign about great white sharks was a little deterrent!! I have to say a huge thank you to Summit for allowing us this time. But i have to warn you i was almost attached at the hip to him before that month. Now after another month of not leaving his side i don't know that i can. I really like him! It is a great blessing to be married to your best friend. Your soul mate.
But i have to say i miss you guys at Summit - especially my Sunday School class. I know you are enjoying Mrs. Jenny, and all the great ones who are filln' in for me - - but don't forget me!! Thanks for all your sweet prayers, i love you guys and will be back soon. Will i am lookn' forward to one big hug!! Aaron will just have to move over!!

thanks for loven' on us so wonderfully

nise

Day 11 - 8:05 a.m.

Good Sunday Morning!
I would like to give this blogging thing another whirl.
You have all been more than kind to take the time to write and your prayers have sustained us. No, honestly, we have been sustained by your intercession.
It has been 14 days since i have eaten. I had some soup yesterday, but you just can't chew soup. God had a 14 day fast planned for me and it has been a blessed walk with Him. Not that i recommend taking this path for alone time with God; but has been sweet.
Denise has cared for me just like a mother does a new born baby. EXACTLY like a mother takes care of a new born. Maybe that is sufficient for all to understand.

Some of you may have had the opportunity to experience the power and emotion of an old time, foot washing. What Christ did for the disciples just before his murder, he commanded us to do for each other. I know a lot of churches and people who interpret this litterally, so they regularly have foot washings at church. I interpret the passage to mean that we are to minister to one another as the need for ministry arrises.
Friends, you have washed my feet. I am humbled to tears. Receiving is hard. The recepient is always more touched by the moment of washing than the giver. Thank you.

I have two specific requests this moring. First is for my bride. She has been washing my feet so much lately that she isn't taking as much care for herself as she should. Please pray for my bride. She is simply a champ for me. You know, we love to be together! So being in a room with the one you love for a 21 day stint can't be all that bad when you really enjoy her company so much.

Lastly, let me ask you to pray for my system. Today the tubes begin to be clamped off, removed, and the like. In fact, I may loose a total of three tubes within the next 24 hours. IF my systems all work well, then they stay out. IF my systems are not yet awake, then they will have to be replaced. I would really enjoy being tube free again. Please pray for a system that is alive and well.

Until we meet again! OH What A Savior!
PA

Saturday, July 26, 2008

End of day 10 7:25 p.m.

Greetings from St. Pete,
I promise i got my whining over!!
We have just spoken with the doctor - Aaron does not have a bladder infection. So i suppose he is just having a 'down' day. They are going to keep check the rest of the weekend and leave the cath in till Monday and the Urologist is back. They will probably try again Monday to remove the catheter. Thanks for all the prayers - i suppose we just needed a lazy stay - in -bed - day.
Everything else is on schedule. I truly believe strength wise he is well ahead of schedule!! Tomorrow promises to be an eventful day! He gets 1/2 of his staples out and 'maybe' one of the drains - woo hoo !! He gets to start a full liquid diet - they will clamp the G-tube to see how his stomach handles 'food'. If all progresses he will get 'real' food Monday. Maybe that is why we needed the rest today! I know my Father always knows best!
Russ we will make a date for that Varisty burger when we get back!! it's the experience not the food - haha!!! - - - 'whata ya have . . .'
Richard we gonna' need some of that BBQ i've heard so much about . . .
You all will never know what your words of encouragement have meant to both Aaron and me - your words and prayers are what's getting us through this!

Talk with you all tomorrow - enjoy services for us . . .
love ya

nise

1 Cor. 1:4

Robert there are no outsiders - you are one of us!! Aaron

Day 10 1:25 p.m.

Friends,
I am afraid words fail me. . . it is possible Aaron has a bladder infection and this is the hold up. They are testing we should know later today. Maybe some (more) antibiotics can fix the problem. He is already taking a mouth swish (yuck according to him) for thrush due to the antibiotics he was on to prepare for the surgery. He is not feeling very well today. Back on that roller coaster. At least at Six Flag's i only get on them if i choose to! Oh, please, forgive my whine. I know God is faithful and i know 'this too shall pass' . . . 'even if not' . . .

love you all

nise

Friday, July 25, 2008

End of day 9

Dear faithful prayer warriors,
Do you remember the passage in 1 Kings when Elijah challenges the gods of baal? Short version - Elijah is preaching that God is the only True God and the priest of baal are balking; so Elijah offers a challenge. They build an alter for sacrifice and Elijah says call down your god's to consume the sacrifice. The priest of baal spend the day petitioning their god's, tearing their clothes, their bodies and begging their god's to answer. NOTHING happens. Elijah taunts them "a little" ,"where is your god, did he nap or maybe he took a walk" he ask. . . after a long time Elijah says ok, "my turn". He repairs the Lord's alter and says, "But before i start pour water on the sacrifice. A LOT of water. So much water that it puddles around the sacrifice." When the sacrifice is soaked and dripping Elijah calls on the God of Abraham and immediately the sacrifice is consumed. Not only the sacrifice but the scripture says the water was lapped up by the all consuming fire. That is the God i serve.
And as Shadrack, Meshack and Abednego said in Daniel . . ."but even if He does not rescue us . . . we will still serve Him. " That is the God i serve.
Sometimes He doesn't answer so swift or like i would like. But He is still God - my God.
Today they took the catheter from Aaron and we had a great day. He was strong felt good, no nausea, just generally felt good. (especially considering . . .) and then his bladder didn't work. About 5:00 p.m. they had to put the Foley catheter back. Not only did they have to put it back it did not work the first time - so it had to be done again. It has been about 3 hours now since they got it going. We both had a nap and he is easier. We will try again in another day or so.
But you know what? God is still on the throne and we will still praise His Holy name. Because there is no cancer and the threat of cancer has now been removed. I don't pretend to understand why God chooses to answer, sometimes, the first time we call and sometimes He doesn't; but i know that just because He doesn't, does not change the fact that He is good and we will serve Him.

In Him
nise

Day 9 9:40 a.m.

Good morning!
A good nights rest is wonderful!! Five hours last night i think! Two nights in a row!! woohoo!!
They took Aaron's cath out 'again' this morning. Please pray that the bladder cooperates and does its job today - quickly! He started a clear liquid diet to day - so far one cup of grape juice and a glass of water. If all progresses tomorrow he gets a full liquid diet and the next day, FOOD! He may even get a burger!!! Wendy's is across the street and McDonald's is down the street, Tom Tom is ready to find any he wants!! You know hamburgers are one of God's great gifts to man!!
Amazingly he has not lost any weight. They have him on a high protein, high calorie nutritional supplement that is injected into the blood stream, not the abdomen, that is designed to maintain your weight. They will wean him off this as his appetite increases.
Have a blessed day!
nise

Thursday, July 24, 2008

End of day 8

Dear friends,
Have i ever told you i don't like roller coasters? Well, i don't . . .!! still!! (by the time we are home you guys will know all my secrets!) Not the ones at Six Flaggs and not the one at St. Pete. It seems every day is filled with ups and drops. But you know the Lord is faithful even during the drops to catch me.
Today started well, a really good nights sleep for both of us, maybe 6 hours, by far the longest since arrival. Aaron felt 'pretty' good, ate 1/2 his banana Popsicle, when you have had nothing for 9 days it does not take much to satisfy. We walked and he had instruction from the nurse about his new system (she is great). This is the first day he has at all felt up to communicating and comprehending. Actually had two sessions with her because she is going out of town next week and wants to be sure he gets all the info she has for him. Then he got his "bath" walked a couple of times, 2nd time rode the elevator down stairs and walked outside, (for 15 seconds) - it was raining so a 'little' cooler. Then back upstairs to bed. Had company from home that was a nice short visit. Then the drop. . . By 2:30 p.m. Aaron was shot. He spent the afternoon in bed completely warn out. It takes the least to completely ware him out. He gets frustrated with himself and i keep trying to reassure him, "my sweet you had MAJOR surgery. . . ." he is not very patient with himself.
Mail came during the 'class time' with the nurse so we did not open the cards when they came. I also did not check the blog during the day for we were 'busy' early and shot later. This evening Aaron is a little stronger so i opened the cards and read the post on the blog. And wow how we were ministered too. Your love is overwhelming. At times we have both longed for home - missing sweet days in Guntersville and thinking what if the Lord had never called us on to other ministries. Then i read the cards, the comments on the blog and opened the package . . . and the Lord says, "how many of these sweet saints would you never have known had you not left home." And how we needed your love today. Thank you for allowing yourselves to be used by my sweet Jesus to catch me when i dropped . . .
Thank you Jesus, for always knowing what we need . . . it is always a good plan . . .

good night
nise

Day 8 - 9:35 a.m.

Sweet friends,

If you had any doubt let me tell you - PRAYER WORKS!! As i write this post Aaron is eating a banana Popsicle . . . yip eee!! One day before schedule!!! woo hoo!!! Thank you sweet Jesus! As i wrote last evening his tummy started to rumble his output changed and the digestive system decided to work. The Lord spoke and said it is time.
I have to tell you what happened yesterday afternoon. I have to confess Aaron and i were a little blue, he had not felt very well all day and there just didn't seem to be any reason to believe things were going to improve any time soon. I had the blinds closed because Aaron can rest better when it is darker in the room. I sat on the couch and for some reason felt the urge to push back the blinds, just a bit, and as i did the most beautiful rainbow came into view. It was in the perfect place for me to see almost the complete bow! I don't know how many of you know, but rainbows are 'one of my favorite gifts that God has given '! The tears flowed and sweet release came, God spoke, my language, and said its gonna be ok. Within the hour the nurse heard his tummy rumble. You know . . . if the God of the universe can stop and paint a rainbow in the sky in just the perfect place at just the perfect time just for me - - - what can't He do? Remember what He told Job.
I love you all. . . thanks for standing in the gap

nise


Wednesday, July 23, 2008

End of day 6

Quick praise - but a big one!!!
We hear rumbling in Aaron's tummy!!! that means it is waking up! thank you for all your prayers . . . i saw that beautiful smile today

Day six - 9:35 a.m. a word from Aaron

Hello Everyone!
This is Aaron. My first shot at blogging......my first shot at this computer in, well, i just can't remember how many days. My first shot at saying something from beyond the haze of anestesia, medications, and general organ relocation; however certainly not my first shot.
Things here continue.......
I really wish i could say that things are making bold jumps and i am strong and ready for a hamburger. The truth is, i am ready for little more than a walk down the hall three times a day followed by a drop into bed.

Before my emotions erase my sight, let me make a few pointed comments:

First, your faith has moved me to tears. Thank you for your prayers and every post. Each day Denise checks the site and reads me each note. As she reads I lie in bed, pretend to be alive and cry. All i know to say, is "thank you."

Second, you just can't know how Denise has cared for me. She is doing what she does best. She is loving me. There has never been a new born more cared for and attended to than this man. And as she does, i lie in the bed, pretend to be alive and cry.

And finally, while i would not wish this on an enemy, the path has been sweet. I am fine, really. Oh, i don't what to tackle Jordan in the front yard and wrestle like we sometimes do, but i will one day soon.
Through the gifts of days like these we get to experience Jesus in a more personal way. You see, in these days of complete humiliation, weakness, and dependence, we meet Jesus as something more than just Jesus, the Lord, or even God All Mighty. When you are all alone and silence thunders, and muscles won't work, and sickness comes, and wellness won't, there, we meet JEUS THE PIERCED. And as we meet, i lie in the bed, knowing He is alive, and cry.

All my love.
PA

Tuesday, July 22, 2008

Note from Aaron

Hey again,
Aaron wanted me to send his love and "apoligize'' for not posting himself he is just not up to communicating, YET!! He says thank you for all the prayers and kind, kind words, cards and gifts. He is blown away - as are the people here. I have displayed all the cards and the staff are most impessed by how much he is loved. You guys are the best!!
we love you!
thanks
aaron

Day six - 12:40 p.m.

Sweet prayer warriors,

I have known, loved and claimed Jer. 29:11 ever since the Lord gave me that verse almost 25 years ago. As i have shared with many of you, before Aaron's first round, 5 years ago i "interpreted" (by choice) this verse that God had a GOOD plan for me and all those i loved.
woo hoo!! And He does.
But i think i thought in my little brain, once again i choose to think, God never promised this, that if i did what i thought i was supposed to do then God would give me a good life with no problems!! The thing the Lord finally taught me is that HE has a plan WHATEVER is happening. And because He has a plan then He has made a way and it is GOOD! Sometimes i just have to trust that even when He doesn't answer just like i want He is STILL God. And just because He acts vindicates, the act! Why would i want a God i could control or understand?
Guess He thought i needed a refresher course . . .
They had to put Aaron's Foley back in. His bladder just isn't ready to assume the job. Gonna wait another day and try again. His tummy is still not kickn' in either. Seems they are all having a hard time waking up. He had this problem last time, so we will just wait until the Lord is ready to wake it all up.
I was just at the ice machine and had a 'chance' meeting with a man whose 36 yr old daughter is here also. Been here going on 2 1/2 months. She had her colon removed 5 yrs ago or so, due to chrones, and has had mutiple health problems her whole life. She has never had a life. Her father said death had called her 6 times in her life but the Lord had said, 'not yet,' each time. She had an emergency surgery last Thurs. was supposed to go home Sat., then Sun, then today. But her incision has burst open. But you know he was smiling and praising God. God gives me those when i need them to see how much grace He is showing. It can always be so much worse. This is just one story . . .
Thanks for all your prayers the Lord is still on His throne and i will praise HIM!!

Later
nise

Monday, July 21, 2008

Monday the 21st evening - special prayer request

Hey guys,
Got a special kinda urgent prayer request. As i told you earlier Aaron got the Foley out before noon today and his kidney's have yet to act. Please pray they do soon. He actually has until 11:00 tonight . . .he is most uncomfortable and the options if they don't start on their own are not good. . .

thanks,
nise

Day five - Monday - 12:55 p.m.

Hey guys,
Sleep - wonderful sleep. Thank you Jesus! We both got a good nights sleep last night, 4-5 hours - (for a hospital room that's amazing!) . They gave Aaron a sleeping aid (clamped his G -tube so he could absorb it) and it worked! Thanks for the prayers for sleep.
Got another specific request - his digestive system is having a little hard time waking up - same as last time. They are not 'concerned' yet but it needs to wake pretty soon. He is walking really as much as they want him to and he is up in the chair also. Movement is really the only thing he can do to help it wake up and he is doing his part. Might need a little 'Devine' help.
He got the Foley out this morning - one day early!!! woo hoo - that made him really happy. So we are down to 4 drains to go! The rest will be in for another 9 days or so.
We got mail twice today (and it is only noon). The second delivery came on a cart . . . the little guy who brought is was impressed . . . he thinks Aaron already has the record! haha Hallmark is really happy!! Thanks for all the love, i read every card and note to him. (Geil's the pictures were a great reminder of a great week! )
Todays 2nd delivery came at a really perfect time - the first card i opened read, 'Come meet the God of encouragement. He never gives up on you, especially when life is hard, because He has been there. The hand that reaches out to comfort you is a pierced one.' max lucado
Aaron was having a pretty good 'bout of nausea and just feeling in general - well - lousy. I 'think' God knew he needed a touch. . . isn't God good. . .

love to ALL,
nise

Sunday, July 20, 2008

End of day 4

Hey friends,
Today has been 'pretty' good. Aaron has not "felt" as well - probably because of the lack of a good nights sleep. Hopefully tonight he will get that. He walked 3 times up and down the hallway. Little nausea still and having to take something for that but tolerating the pain pretty well (he is the tough one in the family!!)
I was talking to a friend earlier and they were asking about Aaron's incision and such. So Aaron thought it might be a good idea to address this on the blog. I counted the staples in his tummy and there were 42 that i could count. There may be one more in his belly button and a couple more under the bandage for his G tube. He has 5 tubes taking things from his body and a port with 5 'plugs' to put things in and the draw blood. He should get one of the drains from him taken out Tuesday - possibly tomorrow if he can talk the Doc into it. The rest will stay with him for at least 11 more days. As you can see he has good reason to not sleep well!!
Thanks for the continued prayer - and the sweet words, we both look forward to reading the post . . . and hearing from home . . .

nise

Day four - 8:05 a.m.

Good morning!
We are up - had a bath - sponge - no shower for a WHILE yet, had a walk and ready for the day! As soon as Aaron got back in bed he said, "you have to post, this is Sunday and i want them to hear before church." He is always thinking of you all.
Still not having much luck sleeping at night - of course when you are awakened every hour to irrigate, check vitals, etc. it is understandable. Had a little low grade fever the last couple of days - but they are not that concerned. We do not have a word about his anemia yet. They drew more blood this morning about 5:00 a.m. we will find out later this morning the final word on what the plan of attack is for that.
He is getting a little stir crazy. For a very active guy laying in bed all day - punctuated by sitting in a chair - only to be rewarded by a couple of very short walks is kinda hard to deal with. His pain is much better so he is ready to 'get on with this'. Patience is not his strong suit! But he is being a very good patient. All the staff are wonderful, and as we were told the first day ,"choose" to work on this floor with these patients. So they are specially trained for BCIR patients.
Have a wonderful day!

love you all
Aaron and nise

Saturday, July 19, 2008

Day three update

Hey guy's,
Today has really been pretty good. Much better than anticipated! Thanks for all the prayers! Aaron walked and did really well with that. He was a little dizzy and nauseous, but actually, the nurse had to slow him down and not let him go as far as he wanted to go. After walking he sat in the chair for about an hour! Then he slept really peacefully for a couple of hours.
Things seem to be progressing as scheduled. May have a little issue - he is a little anemic. Tomorrow they will check his levels again and see if he just needs a little iron or B12 or if he has to have a little blood. They are not all that alarmed by this - just needs a little attention.

Till tomorrow . . .

nise

Day three 6:45 a.m.

OK - so nights are not for sleep - i get it . . . The Adavan (sp) helps the hiccups - spasms but causes jitters and dreams, vivid dreams . . . are there no 'perfect' drugs? haha
(Channing you were prayed for at about midnight last night - don't really know what about but he was praying for you.) You know that saying he has passed on to you that, 'what is in the well comes up in the bucket' . . . his love and concern for his flock is in his well.
now i must confess there was some funny stuff in there too . . . for another time when he is better. . .
Today they say will be the toughest day. Everything is waking up - including him - and the pain will be worse. So we are preparing - he is getting a pain shot early! He did not have one yesterday at all.
But the good news is . . . it is day three and not day two!! Six days till the BIG bannana popsicle . . . they have really good ice chips here but come on . . .

we miss everybody, thanks again for everything

nise