Thursday, July 31, 2008

day 15.75 post II

All,
This is the sick guy again. Don't mean to bore you, but i want to share something special.
Many of you don't know that i am a fan of poetry. My primary recreational reading is English Lit. Sorry, i am just a boring guy.
Anyway, while i was in surgery my precious daughter had the idea to have each person write a phrase from one of my favorite poems in their own script. She then took the single sheet complete with the poem in 8 different scripts, framed in between two sheets of glass in a handsome frame. I have read it over and over.
I'd like to share it with you with the understanding that this verse just means a lot to me. It isn't Scripture and the basic thesis can be debated. However, please read it and let the power of the words sink in. It was written by Rudyard Kipling and goes like this:

If you can keep your head when all about you are losing theirs and blaming it on you;
If you can trust yourself when all men doubt you. But make allowance for their doubting too;
If you can wait and not be tired by waiting, or being lied about, don't deal in lies, or being hated don't give way to hating, and don't look too good, nor talk too wise;

If you can dream and not make dreams you master,
If you can think and not make thoughts your aim;
If you can meet with triumph and disaster. And treat those two impostors the same;
If you can bear to hear the truth you've spoken, twisted by knaves to make a truth for fools, or watch the things you have given your life to broken, and stoop and build 'em up with worn out tools;

If you can make one heap of all your winnings and risk it on one turn of pitch-and-toss,
and lose, and start again at your beginnings and never breath a word about your loss;
If you can force your heart and nerve and sinew to serve your turn long after they are gone,
And so hold on when there is nothing in you except the will which says to them, "Hold on";

If you can talk with crowds and keep your virtue, or walk with kings-nor loose the common touch;
If neither foes nor loving friends can hurt you;
If all men count with you, but none too much;
If you can fill the unforgiving minute with sixty seconds' worth of distance run-
Yours is the Earth and everything that's in it,
And - which is more...............you'll be a man my son!

post op day 15.5 post II

All,
Today has been good physically. We are still in a delima over the uncooperative bladder. It will work when God wills it to work. Until then we wait.

About an hour ago the mail person came by our room. This time it took three people and a cart. Among all the special deliveries were a few that brought us both to tears.
The McQuade family sent two boxes of boxes. The McQuade children sent a very special care package for me on my mission trip to the hospital. They used their own "God Money" to purchase a number of stuffed toys. They made get well cards and asked me to hand them and the toys out to others while i was here. WOW. The other box contained a "foot washing" for my bride! Never have i seen her so moved. She wept. They also included a gift for our new friend Beth. We took her the gift as soon as we received it. It was the first time i had seen her walking.

The Templeton box held all sorts of goodies. Among the treasures therein were two pictures of modern day super heroes. I am not sure if i can post the names, but in real life they are Noah and Nicholas. They also included a Hot Wheel. Not just any hot wheel now, it was a '69 GTO convertible! Now that is what i am talking about!

Thanks to the Perez family Denise has all she needs for a candle lit dinner will all the accoutrements.

Jimmy came by today and brought a bundle of cards. I enjoyed our visit and the report from Ukraine.

Folks, you have blessed us beyond our ability to receive. Thanks for everything.

We feel a lot of love here..............................except from the folks in the mail room.

Blessings
PA & NISE

post op day 15 post I

All,
Sick guy here.
I feel better than James Brown! The bladder is still weak, but I really feel great.
Here is the run down again: 50 staples - gone; 1 drain tube - gone; shots in my stomach - gone (i was having one each day); IV - gone; connection to the "G" tube - gone; treatment for Thrash - gone; O2 - gone; dignity -gone!
All that awaits my return to my new normalcy is: removal of "G" tube from stomach; removal of Penrose drain in lower abdomen; removal of pouch drain; an awakening of the bladder; learning to self-intubate and the removal of the last shred of modesty & dignity.
So as you can see, i am almost home.

Enough about me; how about you guys!?! You have all been champs for Denise and me. We check this thing many times each day and are moved by the postings. The knock-knock jokes from the Traylors are a special delight. Brad, the quote was from Bear Bryant. (For those who don't know who Bear Bryant was: he was a football coach at Alabama.....before most of you were born.)
Sadie, your post lifted my spirits and touched my heart. Sadie has shown such grace though over five years of fighting with cancer. Sadie Roberts is my hero! Thank you for your example of grace in the valley.

One of my hopes of Heaven is the fact that then you will all know each other. I just can't wait for you guys to meet in Glory! Won't it be wonderful to see the lives that we have touched? Your posts mean that my life has meant something. I have to admit, in ministry you often wonder if your words, ministry, or even your life is making any difference to anybody. Seeing a post from my kids, now in ministry is a powerful reminder that no gesture goes without reward.

I haven't preached in three weeks and i feel one coming on! I must close for now. Nurse Cratchett is on the hall and she heard that i ate a cracker 8 hours early. Thanks for the notes, prayers, jokes, and mostly for loving the Johnsons. We love you all, and there is not one thing you can do about it.

Blessings,
PA & Nise

Wednesday, July 30, 2008

Post Op day 14.5 post II

All,
I must be better since i am typing on a computer for the second time today.
Today has been a day of bickering with my bladder. You never think about that thing until something goes wrong with it. It still doesn't want to render me full support. Rather, it is a solid "D" student. It does as little as possible to get by.
On the up side; i am now staple free, and my IV was removed earlier this afternoon. This leaves me with only one umbilical still holding me to my room and bed. I can remove it as often as i like and walk as much as i feel able. For the first time in 16 days, Denise walked down the hall hand in hand, well, arm in arm, or more truthfully her under my arm.
I seem to be ahead of the curve in regard to how i feel in general and i know i am well ahead in the pain department. It is a sure bet that i feel better than i look. Of course that is always the case.
Until tomorrow, thanks again for all your prayer support, blogs, cards, and well wishes. You have moved me more than you can know.
Blessings,
PA

14th day post-op

All,
This is sick guy again.
This morning i feel well. We are still in a tug of war with my stingy bladder. Every ounce it gives is painfully hard fought. We really need this apparatus to be a great deal more generous.
All your posts are thrilling. I love the new names and i have to chuckle to think that we are filling cyber space with ramblings about such. A nurse told us that when one of her patience left the hospital her son and husband came to pick her up wearing tee shirts that prominently displayed, "I love my front-dumper." Like the great Theologian, Forrest Gump said, "That's all i have to say about that."

Now for the word:
The prophet Joel records a promise from God that is so useful in these barren seasons of life. God tells Joel to tell the people, after the flying Locust and swarming Locust have come and the crops are all gone and there is no wealth or provision, "I will restore unto you the years the Locust have eaten." Wow, what a Savior.
I don't understand why God has chosen for me to be sick for so long with such a serious condition. Maybe i have a lesson to learn. If that is the case, then pray that i hit that learning curve pretty quickly. I am running out of organs.
Or perhaps it is like Paul and the scars foster humility.
Or maybe somebody needs to see someone else walk through the valley for an example in the flesh.
Or maybe He just knew I could be faithful with the opportunity.
Regardless, I am here. The greatest prayer you can pray is not for my healing, though that is certainly appreciated. Your greatest prayer for this Pastor is that he not miss the blessing or waste his sorrows.
I am convinced that He is able to keep all i have given Him safe until that day of His revealing. These are days to give Him more and hold to less.
And ultimately I know, He will restore the years the Locust have eaten!
I will take physical pain over the grief of sorrow every day of the week and twice on Sunday! My problems are just physical. Praise be to the one who can raise this body and restore the years the Locust have eaten.
Love you all,
PA

I really should not divulge information about Beth so if you would like to send her a card you might send to us and we will get it to her. Her family is most grateful for the prayers, thank you!

Tuesday, July 29, 2008

Hey,
This is the sick guy again.
Today has not been a good day. While the on board liquid exhaust holding tank, with built in system redundancy, has begun to work; it has not been without substantial pain. Today i took a pain shot, the first since the day after surgery.
That means that tomorrow i should be as good as new. When this bump is behind us we will have merely to await healing and learn how to use my new system.
We have been trying to come up with some means of referring to my new system. What do you think about "anterior waste elimination system?"
Did i say that i had a pain shot? Maybe i need to keep still and quiet and let my infinitely better half keep informing you.
Regardless, the healing process should now be full speed ahead. I have asked about leaving a little early and there is a possibility that i might get out 2-3 DAYS early. Of course that will require a flawless reentry from this point on. The nurses tell me that the wicked nurse has been on vacation and will return tomorrow. The rumor is that she is strictly by the book. That will eliminate any chance of time off for good behavior.
Thanks for all your prayers. They have sustained us for these fifteen, overwhelmingly difficult, days.
We have another praise! Yesterday Denise shared about a young lady here. Her name is Beth. yesterday the outlook was grim. They took her for emergency surgery last night and due to a chemical reaction, they could not do the surgery. Today they made another attempt. To the surprise of the Doc and the praise of God, she simply no long needs the surgery! Beyond reason and knowledge is the power of prayer. Thank you for praying for Beth.
Blessings and love,
PA

End of day 12 - a praise

Friends,
Thank you for praying!! we have had success!! kinda . . . his bladder has acted but it has been a most painful day. I suppose because the bladder has had such a hard time waking that it is still going too slow. He actually had to have a pain shot this afternoon the first since the day after surgery. He has also pushed his button several times. He is resting now - easy. Please pray that things continue to progress - there is a standing order to replace the catheter should he continue to have difficulty. We do not want that to happen. It is so hard to watch him hurt.
I have so enjoyed reading - singing the hymns that you all have posted. Probably no one 'enjoys' praise chorus' more than me - but you just can't beat those old hymns. We tend to not like to think about our sin problem, and how it took a lot of perfect blood to cover it. It is so much more pleasant to sing "He's got the whole world in His hand's . . ." I am not being critical it just makes it all seem so much more pleasant - than, say . . . "Washed in the Blood.'" . . . And Calvary was not very pleasant . . . I think maybe if we are reminded of the cost of our Salvation regularly and the just how Holy the God we serve is, and that He knows just how much our salvation cost . . . we might live a little differently. . . guess i'm preachn' now - or medlin . . .



nise

Monday, July 28, 2008

Day 12 - 7:30 a.m.

Friends,
Good morning and it is a good morning! We were up early, have already had a 'bath' i use that term 'loosely', but i will say the bath room floor is clean when we are done. Haha!!

Jamil, one of our favorite nurses, he works nights, took the catheter out this morning. So we, or i should say Aaron's bladder, is on the clock again. So once again i ask for prayer for his bladder. Doc said last night labs show no sign of infection, but it will be today before we know about the culture. We will let you know.
By six o'clock this morning Aaron's tummy had that 'hole' in it and breakfast doesn't come till about 7:30 a.m. So Lori you will be proud to know i got outside this morning; to make an early run for breakfast!! McDonald's is just down the road! yum, yum!!
Please pray things kick in soon!!! We do not like the options!!
Have a great day!!

nise

End of day 11

Hello again,
Aaron got the rest of his staples out - we did not count this time but there were at least 25. He also got to eat - - - - - yeah - - - - - and kept it ---------- all. woo hoo!!! the G tube is still clamped and things are progressing without nausea!!!! He had an 'upset tummy' after eating but no nausea. Considering his tummy has had no solid food in 14 days that is pretty good!! He did not eat a hamburger - decided to wait until tomorrow. Did not want to 'chance' the perfect food!! We have not seen the urologist or Dr. Garcia yet so we still don't know anything about the bladder. Don't think they know what to do - things are just supposed to work when you remove the catheter - and when it doesn't, well, - - - that is why they call it 'practicing' medicine. . . . catheter is still in so will probably be in till at least the morning. yuck!!
Daniel and Caleb have we told you how much it hurts to laugh? Aaron found out tonight. Great joke!!! Thanks for 'doctorin' us in such a 'real' way - as they say laughter is the best medicine!!
To all of you have sent word that you are reading the blog but can't post - don't worry about it - - i probably couldn't figure it out either. . . but thanks for caring so much that you try! Your cards are amazing. I started putting them up in the room - but there isn't nearly enough room. Hallmark loves the Johnson's!!! Thank you, thank you, thank you.
I have a special request that is not for us. There is a young lady down the hall - 36 yrs old that i mentioned earlier in a post. Her name is Beth. She has been here 2 mos. and is in emergency surgery right now to 'rebuild' her pouch for the 4th time. Due to disease in her body her first pouch failed, her second pouch was destroyed in a car accident the third pouch just did not work - so they are trying again. She has been sick since she was 16 years old. She is a very, very sick lady. Her family are strong believers but stand in need of some intercession. You guys are the best i know. So please pray on . . .

In Him,

nise

12:05 p.m. Monday the 28th

Hey guys,
Quick post - we just had 'mail call' actually for the 2nd time today - and this huge 'card' was brought in ???!!!??? along with another stack of regular sized cards, - - a beautiful rainbow was drawn on the back and many stickers decorated the 'envelope'. As i used Aaron's knife - yes i actually used the knife - some will understand - to open the envelope - a beautiful card chucked full of beautiful messages, came into view. Aaron is lying in bed with colorful lie's adorning his neck reading the messages! with that beautiful smile shining brightly!!!! thank you for including us in VBS at Summit!! As we said before we left this is the first VBS either have missed in our lives. I brought my camera but forgot to bring the cable to connect to the computer or i would send you a picture. My description will have to do till i can show you the picture!! thank you, thank you, thank you!!!
nise

Day 12 10:00 a.m.

Good morn' friends,
Sleep is good!! Aaron is resting better - with a little 'aid' at night. Yeah!!
We are waiting now for the Urologist to make a visit and make a decision about the catheter. We do not have the results from the urine culture, but they did go ahead and start an antibiotic - to get a jump start just in case. Thanks for all the prayers i can say i have a peace that i did not have when Dr. Garcia first told us of the possible infection. God is good. . .
Aaron is eating - about every two hours he gets a 'hole' in his gut (his words) that says, "feed me"! So i got some soup in a cup and warm that when it hits. He is handling it well. The nurses keep warning him to not go too fast. He is on a limited 'real food' diet today. If he thinks he can eat it he can try - within limits. So i will be making a burger run shortly!! woo hoo!!
As Joseph was mentioned in one of the post i have to reflect, for that is my favorite story from the Old Testament. It would be hard to find a better story to explain the heart of God. (and i need this reminder again) . . . This story has absolutely nothing to do with dreaming. This is a beautiful story of God having a plan!! and yes it was a very good plan - but i am sure Joseph wasn't so sure about that, a lot of the time! God is interested in my holiness not my happiness. Only through holiness am i truly happy, and He knows this. God is a God of the big picture. He knew what had to be done to provide for the future of His people. He knows what has to be done to prepare ME for the plan He has for me. He KNOWS the future i do not!! The truly great news is that He is right here with me to carry me through the times that i do not understand, He always makes a peaceful way even in the storms, if i will only rest in Him. Thank you for allowing yourselves to be used to make this way easier and bearable. . .

till later,

nise

Sunday, July 27, 2008

11:15 p.m. 11th day

It is late. My bed time is 10 pm sharp. But then, what is time when you are in the hospital? it isn't like i have a pressing appointment tomorrow.
Permit me two reflections before i pursue sleep.

The first is a thought on perspective.
Through this blog, you have been given an insider's perspective of our pathway. You have read the words and prayed and i am moved, honored, humbled, and healed by your prayers. Thank you. Now here comes the perspective part. Right now it really doesn't matter very much who wins the iron bowl, the sec title, or the super bowl. Right now i really just want to feel well enough to be on the parking team when i get home. You just can't know what a thrill it would be to be able to walk those wooden steps up to the upper parking lot, to be able to stand in the heat and direct cars, or just to stand for a few minutes. I would be thrilled just be able to serve in any way. Even if it is as a poor example! Russ, there is nothing more important than the parking team and i even have the shirt.

The second reflections is on the saints on the list of bloggers.
Guys we have something in common! On this and through your notes, i have been touched by a class mate from high school, whom i have not seen in 30 years. Another class mate posted and I haven't seen her since leaving Guntersville. I have read die-hard Bama fans write War Eagle, a principle misspell a word, an engineer get misty eyed, children threaten to hug my wife and rub it in my face, and well, you have read them. I just wish you could all know each other..........On these posts are attached some of the most important people in my life. One of the bloggers is perhaps the smartest man i know (i will let you all wonder who). Another is a published and vastly well traveled author and missionary. Another is perhaps the most Godly man i have ever known and the one who impacted my life more than anyone else when i was a teen. I am in ministry today because of him. Still another is a life long friend who called me to be his youth minister 25 years ago. Another is a brother whom i met on a flight from Huntsville to Atlanta several years ago and we haven't seen each other since. I am so grateful to God for each one of you. Thank you for writing.
What we have in common is our relationship in Christ AND the fact that in days gone by I have prayed for each one! Oh how i wish you could see the collection of hurts and hopes we all are! I just can't tell you which of these has survived breast cancer, or which one waited for months as his child lay in intensive care fighting for life..TWICE. Which ONES have known the pain of loosing a child. Which ones have a wayward child. And i have had the joy of lifting each of you in passionate prayers over the years! This is just too good to sleep on......
And here we share common ground. We are simply children, trusting a loving Daddy....by the way, the post about kissing the "gorgillia" is from my daughter and she calls me Daddy.
The truth is, our shared faith, pain and dependence is all that ties us to humanity.
SO, let me tell you that your life is urgent! You exist for the purpose of joining in this family of hurting and healing and making a difference. Whose life have you touched today? You have certainly touched ours.
Thank you for all the examples of faith under pressure!
OK...I have started preaching.
Good night dear Friends, good night, good night.

Special request

Friends,
Here we go on that roller coaster again. Dr. Garcia - the internist that has been seeing Aaron just came in and dropped a bit of a bomb. Yesterday he had told us there was not a bladder infection, he just told us - that as they have let the culture grow there is indication of a possible staph infection in the bladder. The white blood cells are not elevated and they should be, so there is the possiblity that it is a 'false' reading. They are doing another culture and will know more tomorrow. After they get the specimen to test they will most likely go ahead and start an antibotic to get a jump start just in case it is staph. We don't need staph. Please pray.

nise

Day 11 - 11:30 a.m.

Hey guys,
Aaron posted this morning so i did not get to! So here i am.
Today's lesson is on , "The first shall be last . . .
No - not really . . . i had some good news i wanted to pass on. They just removed 25 staples from Aaron's tummy, 1/2 of the total and his tummy looks really good. They also took out 3-4 stitches and his JP drain. That thing was a pain in the fanny! Really!! His G tube is clamped and his tummy feels pretty darn good. He has had some soup and a couple of peanut butter crackers. Those weren't on the diet but he was hungry!! Dr. Rehnke said," go for it. All it can do is make you sick." Real comforting!!
So far he feels good.
The next really big hurdle is the catheter. Aaron believes that as his tummy and other things come 'on-line' his bladder will follow. That is our prayer!
Most of you know Aaron and i had the blessing of spending a month together traveling before coming down here for the surgery. (any time you want to see the pics just let me know) We had such a great time!! In one month we swam in the Atlantic, Gulf of Mexico and the Pacific. Well did not swim in the Pacific - way TOOOOO cold. Also that sign about great white sharks was a little deterrent!! I have to say a huge thank you to Summit for allowing us this time. But i have to warn you i was almost attached at the hip to him before that month. Now after another month of not leaving his side i don't know that i can. I really like him! It is a great blessing to be married to your best friend. Your soul mate.
But i have to say i miss you guys at Summit - especially my Sunday School class. I know you are enjoying Mrs. Jenny, and all the great ones who are filln' in for me - - but don't forget me!! Thanks for all your sweet prayers, i love you guys and will be back soon. Will i am lookn' forward to one big hug!! Aaron will just have to move over!!

thanks for loven' on us so wonderfully

nise

Day 11 - 8:05 a.m.

Good Sunday Morning!
I would like to give this blogging thing another whirl.
You have all been more than kind to take the time to write and your prayers have sustained us. No, honestly, we have been sustained by your intercession.
It has been 14 days since i have eaten. I had some soup yesterday, but you just can't chew soup. God had a 14 day fast planned for me and it has been a blessed walk with Him. Not that i recommend taking this path for alone time with God; but has been sweet.
Denise has cared for me just like a mother does a new born baby. EXACTLY like a mother takes care of a new born. Maybe that is sufficient for all to understand.

Some of you may have had the opportunity to experience the power and emotion of an old time, foot washing. What Christ did for the disciples just before his murder, he commanded us to do for each other. I know a lot of churches and people who interpret this litterally, so they regularly have foot washings at church. I interpret the passage to mean that we are to minister to one another as the need for ministry arrises.
Friends, you have washed my feet. I am humbled to tears. Receiving is hard. The recepient is always more touched by the moment of washing than the giver. Thank you.

I have two specific requests this moring. First is for my bride. She has been washing my feet so much lately that she isn't taking as much care for herself as she should. Please pray for my bride. She is simply a champ for me. You know, we love to be together! So being in a room with the one you love for a 21 day stint can't be all that bad when you really enjoy her company so much.

Lastly, let me ask you to pray for my system. Today the tubes begin to be clamped off, removed, and the like. In fact, I may loose a total of three tubes within the next 24 hours. IF my systems all work well, then they stay out. IF my systems are not yet awake, then they will have to be replaced. I would really enjoy being tube free again. Please pray for a system that is alive and well.

Until we meet again! OH What A Savior!
PA

Saturday, July 26, 2008

End of day 10 7:25 p.m.

Greetings from St. Pete,
I promise i got my whining over!!
We have just spoken with the doctor - Aaron does not have a bladder infection. So i suppose he is just having a 'down' day. They are going to keep check the rest of the weekend and leave the cath in till Monday and the Urologist is back. They will probably try again Monday to remove the catheter. Thanks for all the prayers - i suppose we just needed a lazy stay - in -bed - day.
Everything else is on schedule. I truly believe strength wise he is well ahead of schedule!! Tomorrow promises to be an eventful day! He gets 1/2 of his staples out and 'maybe' one of the drains - woo hoo !! He gets to start a full liquid diet - they will clamp the G-tube to see how his stomach handles 'food'. If all progresses he will get 'real' food Monday. Maybe that is why we needed the rest today! I know my Father always knows best!
Russ we will make a date for that Varisty burger when we get back!! it's the experience not the food - haha!!! - - - 'whata ya have . . .'
Richard we gonna' need some of that BBQ i've heard so much about . . .
You all will never know what your words of encouragement have meant to both Aaron and me - your words and prayers are what's getting us through this!

Talk with you all tomorrow - enjoy services for us . . .
love ya

nise

1 Cor. 1:4

Robert there are no outsiders - you are one of us!! Aaron

Day 10 1:25 p.m.

Friends,
I am afraid words fail me. . . it is possible Aaron has a bladder infection and this is the hold up. They are testing we should know later today. Maybe some (more) antibiotics can fix the problem. He is already taking a mouth swish (yuck according to him) for thrush due to the antibiotics he was on to prepare for the surgery. He is not feeling very well today. Back on that roller coaster. At least at Six Flag's i only get on them if i choose to! Oh, please, forgive my whine. I know God is faithful and i know 'this too shall pass' . . . 'even if not' . . .

love you all

nise

Friday, July 25, 2008

End of day 9

Dear faithful prayer warriors,
Do you remember the passage in 1 Kings when Elijah challenges the gods of baal? Short version - Elijah is preaching that God is the only True God and the priest of baal are balking; so Elijah offers a challenge. They build an alter for sacrifice and Elijah says call down your god's to consume the sacrifice. The priest of baal spend the day petitioning their god's, tearing their clothes, their bodies and begging their god's to answer. NOTHING happens. Elijah taunts them "a little" ,"where is your god, did he nap or maybe he took a walk" he ask. . . after a long time Elijah says ok, "my turn". He repairs the Lord's alter and says, "But before i start pour water on the sacrifice. A LOT of water. So much water that it puddles around the sacrifice." When the sacrifice is soaked and dripping Elijah calls on the God of Abraham and immediately the sacrifice is consumed. Not only the sacrifice but the scripture says the water was lapped up by the all consuming fire. That is the God i serve.
And as Shadrack, Meshack and Abednego said in Daniel . . ."but even if He does not rescue us . . . we will still serve Him. " That is the God i serve.
Sometimes He doesn't answer so swift or like i would like. But He is still God - my God.
Today they took the catheter from Aaron and we had a great day. He was strong felt good, no nausea, just generally felt good. (especially considering . . .) and then his bladder didn't work. About 5:00 p.m. they had to put the Foley catheter back. Not only did they have to put it back it did not work the first time - so it had to be done again. It has been about 3 hours now since they got it going. We both had a nap and he is easier. We will try again in another day or so.
But you know what? God is still on the throne and we will still praise His Holy name. Because there is no cancer and the threat of cancer has now been removed. I don't pretend to understand why God chooses to answer, sometimes, the first time we call and sometimes He doesn't; but i know that just because He doesn't, does not change the fact that He is good and we will serve Him.

In Him
nise

Day 9 9:40 a.m.

Good morning!
A good nights rest is wonderful!! Five hours last night i think! Two nights in a row!! woohoo!!
They took Aaron's cath out 'again' this morning. Please pray that the bladder cooperates and does its job today - quickly! He started a clear liquid diet to day - so far one cup of grape juice and a glass of water. If all progresses tomorrow he gets a full liquid diet and the next day, FOOD! He may even get a burger!!! Wendy's is across the street and McDonald's is down the street, Tom Tom is ready to find any he wants!! You know hamburgers are one of God's great gifts to man!!
Amazingly he has not lost any weight. They have him on a high protein, high calorie nutritional supplement that is injected into the blood stream, not the abdomen, that is designed to maintain your weight. They will wean him off this as his appetite increases.
Have a blessed day!
nise

Thursday, July 24, 2008

End of day 8

Dear friends,
Have i ever told you i don't like roller coasters? Well, i don't . . .!! still!! (by the time we are home you guys will know all my secrets!) Not the ones at Six Flaggs and not the one at St. Pete. It seems every day is filled with ups and drops. But you know the Lord is faithful even during the drops to catch me.
Today started well, a really good nights sleep for both of us, maybe 6 hours, by far the longest since arrival. Aaron felt 'pretty' good, ate 1/2 his banana Popsicle, when you have had nothing for 9 days it does not take much to satisfy. We walked and he had instruction from the nurse about his new system (she is great). This is the first day he has at all felt up to communicating and comprehending. Actually had two sessions with her because she is going out of town next week and wants to be sure he gets all the info she has for him. Then he got his "bath" walked a couple of times, 2nd time rode the elevator down stairs and walked outside, (for 15 seconds) - it was raining so a 'little' cooler. Then back upstairs to bed. Had company from home that was a nice short visit. Then the drop. . . By 2:30 p.m. Aaron was shot. He spent the afternoon in bed completely warn out. It takes the least to completely ware him out. He gets frustrated with himself and i keep trying to reassure him, "my sweet you had MAJOR surgery. . . ." he is not very patient with himself.
Mail came during the 'class time' with the nurse so we did not open the cards when they came. I also did not check the blog during the day for we were 'busy' early and shot later. This evening Aaron is a little stronger so i opened the cards and read the post on the blog. And wow how we were ministered too. Your love is overwhelming. At times we have both longed for home - missing sweet days in Guntersville and thinking what if the Lord had never called us on to other ministries. Then i read the cards, the comments on the blog and opened the package . . . and the Lord says, "how many of these sweet saints would you never have known had you not left home." And how we needed your love today. Thank you for allowing yourselves to be used by my sweet Jesus to catch me when i dropped . . .
Thank you Jesus, for always knowing what we need . . . it is always a good plan . . .

good night
nise

Day 8 - 9:35 a.m.

Sweet friends,

If you had any doubt let me tell you - PRAYER WORKS!! As i write this post Aaron is eating a banana Popsicle . . . yip eee!! One day before schedule!!! woo hoo!!! Thank you sweet Jesus! As i wrote last evening his tummy started to rumble his output changed and the digestive system decided to work. The Lord spoke and said it is time.
I have to tell you what happened yesterday afternoon. I have to confess Aaron and i were a little blue, he had not felt very well all day and there just didn't seem to be any reason to believe things were going to improve any time soon. I had the blinds closed because Aaron can rest better when it is darker in the room. I sat on the couch and for some reason felt the urge to push back the blinds, just a bit, and as i did the most beautiful rainbow came into view. It was in the perfect place for me to see almost the complete bow! I don't know how many of you know, but rainbows are 'one of my favorite gifts that God has given '! The tears flowed and sweet release came, God spoke, my language, and said its gonna be ok. Within the hour the nurse heard his tummy rumble. You know . . . if the God of the universe can stop and paint a rainbow in the sky in just the perfect place at just the perfect time just for me - - - what can't He do? Remember what He told Job.
I love you all. . . thanks for standing in the gap

nise


Wednesday, July 23, 2008

End of day 6

Quick praise - but a big one!!!
We hear rumbling in Aaron's tummy!!! that means it is waking up! thank you for all your prayers . . . i saw that beautiful smile today

Day six - 9:35 a.m. a word from Aaron

Hello Everyone!
This is Aaron. My first shot at blogging......my first shot at this computer in, well, i just can't remember how many days. My first shot at saying something from beyond the haze of anestesia, medications, and general organ relocation; however certainly not my first shot.
Things here continue.......
I really wish i could say that things are making bold jumps and i am strong and ready for a hamburger. The truth is, i am ready for little more than a walk down the hall three times a day followed by a drop into bed.

Before my emotions erase my sight, let me make a few pointed comments:

First, your faith has moved me to tears. Thank you for your prayers and every post. Each day Denise checks the site and reads me each note. As she reads I lie in bed, pretend to be alive and cry. All i know to say, is "thank you."

Second, you just can't know how Denise has cared for me. She is doing what she does best. She is loving me. There has never been a new born more cared for and attended to than this man. And as she does, i lie in the bed, pretend to be alive and cry.

And finally, while i would not wish this on an enemy, the path has been sweet. I am fine, really. Oh, i don't what to tackle Jordan in the front yard and wrestle like we sometimes do, but i will one day soon.
Through the gifts of days like these we get to experience Jesus in a more personal way. You see, in these days of complete humiliation, weakness, and dependence, we meet Jesus as something more than just Jesus, the Lord, or even God All Mighty. When you are all alone and silence thunders, and muscles won't work, and sickness comes, and wellness won't, there, we meet JEUS THE PIERCED. And as we meet, i lie in the bed, knowing He is alive, and cry.

All my love.
PA

Tuesday, July 22, 2008

Note from Aaron

Hey again,
Aaron wanted me to send his love and "apoligize'' for not posting himself he is just not up to communicating, YET!! He says thank you for all the prayers and kind, kind words, cards and gifts. He is blown away - as are the people here. I have displayed all the cards and the staff are most impessed by how much he is loved. You guys are the best!!
we love you!
thanks
aaron

Day six - 12:40 p.m.

Sweet prayer warriors,

I have known, loved and claimed Jer. 29:11 ever since the Lord gave me that verse almost 25 years ago. As i have shared with many of you, before Aaron's first round, 5 years ago i "interpreted" (by choice) this verse that God had a GOOD plan for me and all those i loved.
woo hoo!! And He does.
But i think i thought in my little brain, once again i choose to think, God never promised this, that if i did what i thought i was supposed to do then God would give me a good life with no problems!! The thing the Lord finally taught me is that HE has a plan WHATEVER is happening. And because He has a plan then He has made a way and it is GOOD! Sometimes i just have to trust that even when He doesn't answer just like i want He is STILL God. And just because He acts vindicates, the act! Why would i want a God i could control or understand?
Guess He thought i needed a refresher course . . .
They had to put Aaron's Foley back in. His bladder just isn't ready to assume the job. Gonna wait another day and try again. His tummy is still not kickn' in either. Seems they are all having a hard time waking up. He had this problem last time, so we will just wait until the Lord is ready to wake it all up.
I was just at the ice machine and had a 'chance' meeting with a man whose 36 yr old daughter is here also. Been here going on 2 1/2 months. She had her colon removed 5 yrs ago or so, due to chrones, and has had mutiple health problems her whole life. She has never had a life. Her father said death had called her 6 times in her life but the Lord had said, 'not yet,' each time. She had an emergency surgery last Thurs. was supposed to go home Sat., then Sun, then today. But her incision has burst open. But you know he was smiling and praising God. God gives me those when i need them to see how much grace He is showing. It can always be so much worse. This is just one story . . .
Thanks for all your prayers the Lord is still on His throne and i will praise HIM!!

Later
nise

Monday, July 21, 2008

Monday the 21st evening - special prayer request

Hey guys,
Got a special kinda urgent prayer request. As i told you earlier Aaron got the Foley out before noon today and his kidney's have yet to act. Please pray they do soon. He actually has until 11:00 tonight . . .he is most uncomfortable and the options if they don't start on their own are not good. . .

thanks,
nise

Day five - Monday - 12:55 p.m.

Hey guys,
Sleep - wonderful sleep. Thank you Jesus! We both got a good nights sleep last night, 4-5 hours - (for a hospital room that's amazing!) . They gave Aaron a sleeping aid (clamped his G -tube so he could absorb it) and it worked! Thanks for the prayers for sleep.
Got another specific request - his digestive system is having a little hard time waking up - same as last time. They are not 'concerned' yet but it needs to wake pretty soon. He is walking really as much as they want him to and he is up in the chair also. Movement is really the only thing he can do to help it wake up and he is doing his part. Might need a little 'Devine' help.
He got the Foley out this morning - one day early!!! woo hoo - that made him really happy. So we are down to 4 drains to go! The rest will be in for another 9 days or so.
We got mail twice today (and it is only noon). The second delivery came on a cart . . . the little guy who brought is was impressed . . . he thinks Aaron already has the record! haha Hallmark is really happy!! Thanks for all the love, i read every card and note to him. (Geil's the pictures were a great reminder of a great week! )
Todays 2nd delivery came at a really perfect time - the first card i opened read, 'Come meet the God of encouragement. He never gives up on you, especially when life is hard, because He has been there. The hand that reaches out to comfort you is a pierced one.' max lucado
Aaron was having a pretty good 'bout of nausea and just feeling in general - well - lousy. I 'think' God knew he needed a touch. . . isn't God good. . .

love to ALL,
nise

Sunday, July 20, 2008

End of day 4

Hey friends,
Today has been 'pretty' good. Aaron has not "felt" as well - probably because of the lack of a good nights sleep. Hopefully tonight he will get that. He walked 3 times up and down the hallway. Little nausea still and having to take something for that but tolerating the pain pretty well (he is the tough one in the family!!)
I was talking to a friend earlier and they were asking about Aaron's incision and such. So Aaron thought it might be a good idea to address this on the blog. I counted the staples in his tummy and there were 42 that i could count. There may be one more in his belly button and a couple more under the bandage for his G tube. He has 5 tubes taking things from his body and a port with 5 'plugs' to put things in and the draw blood. He should get one of the drains from him taken out Tuesday - possibly tomorrow if he can talk the Doc into it. The rest will stay with him for at least 11 more days. As you can see he has good reason to not sleep well!!
Thanks for the continued prayer - and the sweet words, we both look forward to reading the post . . . and hearing from home . . .

nise

Day four - 8:05 a.m.

Good morning!
We are up - had a bath - sponge - no shower for a WHILE yet, had a walk and ready for the day! As soon as Aaron got back in bed he said, "you have to post, this is Sunday and i want them to hear before church." He is always thinking of you all.
Still not having much luck sleeping at night - of course when you are awakened every hour to irrigate, check vitals, etc. it is understandable. Had a little low grade fever the last couple of days - but they are not that concerned. We do not have a word about his anemia yet. They drew more blood this morning about 5:00 a.m. we will find out later this morning the final word on what the plan of attack is for that.
He is getting a little stir crazy. For a very active guy laying in bed all day - punctuated by sitting in a chair - only to be rewarded by a couple of very short walks is kinda hard to deal with. His pain is much better so he is ready to 'get on with this'. Patience is not his strong suit! But he is being a very good patient. All the staff are wonderful, and as we were told the first day ,"choose" to work on this floor with these patients. So they are specially trained for BCIR patients.
Have a wonderful day!

love you all
Aaron and nise

Saturday, July 19, 2008

Day three update

Hey guy's,
Today has really been pretty good. Much better than anticipated! Thanks for all the prayers! Aaron walked and did really well with that. He was a little dizzy and nauseous, but actually, the nurse had to slow him down and not let him go as far as he wanted to go. After walking he sat in the chair for about an hour! Then he slept really peacefully for a couple of hours.
Things seem to be progressing as scheduled. May have a little issue - he is a little anemic. Tomorrow they will check his levels again and see if he just needs a little iron or B12 or if he has to have a little blood. They are not all that alarmed by this - just needs a little attention.

Till tomorrow . . .

nise

Day three 6:45 a.m.

OK - so nights are not for sleep - i get it . . . The Adavan (sp) helps the hiccups - spasms but causes jitters and dreams, vivid dreams . . . are there no 'perfect' drugs? haha
(Channing you were prayed for at about midnight last night - don't really know what about but he was praying for you.) You know that saying he has passed on to you that, 'what is in the well comes up in the bucket' . . . his love and concern for his flock is in his well.
now i must confess there was some funny stuff in there too . . . for another time when he is better. . .
Today they say will be the toughest day. Everything is waking up - including him - and the pain will be worse. So we are preparing - he is getting a pain shot early! He did not have one yesterday at all.
But the good news is . . . it is day three and not day two!! Six days till the BIG bannana popsicle . . . they have really good ice chips here but come on . . .

we miss everybody, thanks again for everything

nise

Friday, July 18, 2008

End of day two

Just a quick note . . .
We have a new room. We are now in room number 257, same address just different room. The room we were in was very warm, for some reason, and you all know Aaron does not do "hot". So they moved us to another room down the hall that is much much cooler. Now i need the quilt that the quilt ministry made - glad i brought it. It isn't just for show any more!!
Today has been some better. He sat in the chair 3 times - each time brought on nausea, quite a bit of pain, but each time was a little easier to maneuver also.
thanks for all the prayers
we love you all dearly!

nise

Day two 10:30 a.m.

Hello dear friends,
I don't think i like nights any more! Last night was not nearly as tough as the first - but not nearly as good as yesterday either! Hiccups are of the devil - let alone sneezing!! But he is resting now, i will be thankful for that.
He sat up for about 45 minutes this morning and handled that really pretty well. He should be up again later today and then tomorrow he should walk - a little. Not a very easy process when there are tubes and such coming from everywhere! ( As many of you know, I have a hard time walking on level ground with no encumbrances!! )
Ronnie when i told him of your comment about warning the staff . . . sermon illustrations. . . he smiled, a little . . . I know all who know him can't believe it, but i really haven't seen that beautiful smile since surgery. . . I miss it . . .

Till next time . . .

Yes . . . "Great is Thy Faithfulness" . . . what a truth - "one" of my favorite hymns - if you don't know it. . . you will want to learn it, trust me. . .

Thursday, July 17, 2008

End of day one

Friends,
To be honest today started out pretty bad -- just to be completely honest completely terrible!! At 4:30 a.m. this morning i don't think Aaron had had 10 minutes of sleep. Then from about 9:00 a.m. on it has steadily improved. Hum! that would be just about the time i posted my post - you might just think that prayer 'thing' works! Thanks to mighty prayer warriors like Clark, Andrew, Caleb, Kathryn . . . and the list goes on and on we have had an amazingly good day! Especially considering it is the 1st day post-op. Aaron has only had one pain shot ( he does have his pump he can push at will) and that pain shot was before getting up to sit in the recliner for about 20 minutes! He did not request it the nurse thought it best. Then he got himself, with very little assistence from me back into the bed. He has had no nausea medication today and has sleep fairly peacefully. He is asleep now and i must say i have never heard a sweeter sound than his snoring! It is beautiful!!
Good night and thanks for the prayers and sweet, sweet words . . .
much love

Day one - after surgery

Well, they were right . . . last night was really tough. Much, much pain and nausea, but the night is over and he will not have to go through "that" night again. The staff at the hospital are all wonderful! They are taking excellent care of him. Praise God!
He looks great, his color is great, and medically he is good. He just has to get through the recovery. As Jordan keeps saying, "all we got to do is tell him a Marine did it in 'such and such' and he will beat it!!" And he will!!
As you read from the post he is being prayed for around the globe. Thanks again for all the prayers! We love you all!

nise
'dragon lady'

Wednesday, July 16, 2008

Surgery is complete - good report

Friends!
God is good!! Aaron is through surgery - everything looks great and he is headed to recovery!! Dr. said everything went as planned. Aaron had several adhesion's he had to deal with, which accounts for the pain he has had and the additional time in surgery.
Thanks for all the prayers. The next three - five days will be terribly, terribly tough so please keep them up. The first "food" he 'potentially' will have is a Popsicle in NINE days!! He will not be up for company for quite some time so i ask 'humbly' that you love him from afar. The last time he had surgery i was known as the "dragon at the door"!! (Affectionately of course!!)
I have read EVERY comment to him and will continue to do so. Thank you for all the prayers and kind - kind words. We love you all so very much.
The address of the hospital is:
Aaron Johnson Room #265
%Palms of Pasadena
1501 Pasadena Ave. So.
St. Petersburg, FL 33707
Till tomorrow . . .
nise

Wednesday, July 16, 2008 9:00 a.m.

Hey guys,
Thanks for checking on us and posting your comments, they truly mean more than you can know! I have to give a huge thank you to David Cofield for setting up, maintaining and attempting to teach me to use the blog. David you are a blessing in so many ways!! Thanks, i love you man!
Just wanted to drop a line and let everyone know the surgery has been delayed till 12:00 today, orginally it was to be at 10:00 a.m. (another surgery or something). I will post more when i know more. I can not possible call everyone who wants to know, so if you will please pass on this blog to anyone interested, i would most appreciate it! Thanks for your prayers and please keep them going. Aaron is having a problem with nausea so you might include that in your prayers this morning - especially since the surgery is a little delayed.
thanks again for everything!!
till next time
nise

Monday, July 14, 2008

Surgery Scheduled for Wednesday

We met the doctor for the first time this afternoon and our prayers were answered, he is a Christian and talked to us about his faith even before he knew that Aaron was a pastor.  That has added much to our peace.

Aaron enters the hospital tomorrow morning for preparation and the surgery is scheduled for mid-morning Wednesday.  He said it would take between four-and-half hours.

We will post again Wednesday afternoon when the surgery is completed.  

Thank you again for all your prayers and support.

Tuesday, July 8, 2008

Welcome to my Blog

This blog is being created primarily to keep my family, friends and church family updated during my upcoming surgery and recovery. Denise will provide a daily update that will be posted here while I am in St. Petersburg.

Denise and I travel to St. Petersburg for our consultation on Monday, July 14. Surgery is scheduled for Wednesday, July 16.

If you like to leave a comment, we'd love to read your comments but it may not possible for us to reply to them. I'm sure you understand. Thanks for your prayers and loving support.