Saturday, August 16, 2008

From The Beggar

All,
This will probably be my last post on this blog. I am going to shift to our church blog space. You have thrilled me with your posts. You have lifted my spirits. You have made me laugh with knock-knock jokes. You have expressed love and concern for my family and me. For all these and so many more, we are grateful. Thank you for all you love.
Millie Tharle brought us a printed form of the entire blog. There were many posts that we had not read. I have now read them all and have been touched over and over again. Thank you.
I need to clear something up before leaving this blog. You already know it, but i need to remind you; i am a man with feet of clay. I am going to have to forgive some of you for what you wrote. I will have to ask you to forgive me for liking it! Thank you for all your words of affirmation. But remember; I am just a guy, a weak, wounded, human being susceptible to anything any of you are subject to. I don't have a cape, can't jump a building, and i am burdened with the full mantle of humanity.
As you have prayed for me in my illness; i ask you to do all the more for me in ministry. My heart's desire is to be a good husband, father, and pastor. And in each of these ministries I want to finish well. I exist only by God's grace. Please partner with me in the future. Partner with me as a prayer warrior for ministry.
Summit is facing wonderful opportunities in our future. We need more square feet with no new debt. We need to get out of debt and stay that way. We need to explore God's plan for starting new works. We need to strengthen our resolve in following God's plan for our lives and the ministry at Summit. Pray, pray, pray. We must not be behind in following God. The only thing worse is to be ahead of God's will. Pray that I have the wisdom to lead us in God's path of righteousness.
I hope you will follow me to the new blog on the Summit web site. I hope to hear from you there.
We will not be able to be with you tomorrow. I am just too weak to handle. We will be back as soon as possible. Love you all.
PA

Saturday August 16

Hey all,
It has been a while since i posted - kinda let Aaron take over. Thought "he" was the one you wanted any way!! Not that i blame you . . .
Thanks again for all your kinds words and funny post they continue to make difficult days bearable.
I have gotten so many cards with rainbows on them that i will be able to enjoy rainbows any time i want in the future. But man just can't manufacture what God creates!! His timing is always perfect also.
A word of warning should you come to the blog and find no new post for a while- you might check out Summit's blog. Aaron is going to begin posting on our churches site. We have had a little difficulty with this blog the last couple of days and think i understand the difficulty some have had posting. Technology is fantastic - when it works!!!
The churches web site is TheSummitBaptistChurch.org.
Thanks again for everything . . .

nise

Friday, August 15, 2008

Friday evening

All,
The sick guy again.
Sorry, no post today. Too weak, too sick. I am doing the best I can, but, well, i am just not up to a post. Tune in tomorrow.
pa

Thursday, August 14, 2008

Thursday afternoon

All,
Sick, lame, and abused guy here.
Today I thought I would just will myself well. As soon as possible we left the house. We went to get drugs.............interpret it any way you wish! We had breakfast. We went to Discovery Mills mall so i could walk around and do so in the environs of the Bass Pro Shop. That is when the twin brothers fatigue and exhaustion showed up. The attitude was right; the physical support system was just not willing.
Denise served as my beautiful crutch to get back to the car. I slumped into the passenger's seat and found the little lever that makes the seat a recliner. I reclined, she drove and strength is now returning. I can't believe that I am no longer able to do what i did when i was 20! That was a mere 8 years ago. I am fading fast.
My prayer life has gone and is going through a metamorphosis. Prior to about 30 days ago, most of my prayers were for the hurting, walking wounded, the angry, lost, and ignorant. These past few days have been consumed with a child talking to his Father, who happens to be the Great Physician. He hasn't been forthcoming on His rational; it is strictly a need to know basis. I have the needs and He has the know. That will have to do for now.
Through this adventure I have settled on a new name for myself. I need a new name that more accurately reflects my close relationship with the All Mighty. I need a name that beautifully articulates my walk with the King of Kings. I need a name such that, when people speak it, they immediately know that i am an heir in waiting. I need a weighty name that is worthy of one like me. No common name will ever do now. I have been introduced to my true spiritual self and my new name must be in stride with my new found walk and position in Christ!
From now on I can no longer be merely "Aaron." To convey all the above, I must now be "Aaron, the beggar." I think that sums it up nicely. I am completely dependant on His grace. Grace, Amazing Grace, for a beggar like me...............
Blessings,
The Beggar

Wednesday, August 13, 2008

Wednesday evening

All,
Sick guy here.
Well, i am over my emotion from earlier. Here is the rundown for today:
The dr. appointment was at 10:15. By 10:30 i was again free from any connection to an appliance. By 10:45 it was obvious that i was once again failing my test. All the prep from the week gone by, well, went by. The doctor wanted to do a cystoscopic exam later in the day and wanted to replace Mr. Foley! I asked for a little time off to see if the system would somehow jump-start. He agreed, but gave me a 1:00 deadline. If the flow was not on by then, I had to phone him to schedule the cysto exam.
You are ahead of my aren't you? One came and I called. There was a series of miscommunications before the receptionist from the surgery center phoned and asked if I were coming or not. I told her I was just waiting on the call. She said be here in 15 minutes. At 3:45
we ran from the house headed for the surgery center at Kennestone.
As soon as we arrived the took me back for the prep and procedure. I asked for Valium. They laughed. I was dead serious. Hey, if I have to go through all this poking and prodding I thought it wouldn't be too much to ask to be comfortable; or at least drugged to the point I didn't care that i was about to be humiliated (with an audience) and prodded in a most unpleasant way. Still no Valium.
The scope resembled a black industrial strength hose you might see at a service station or fire truck. There was a little light on the tip. I guess the doc might not have good night vision. I asked him if he needed a map. He did not.
Once the truck pulled the scope from me the doc was all smiles.
"No need for the laser! You have an infected and inflamed prostate." Well, normally that would not be good news. Anything short of a death sentence sounds good these days! "So what are we going to do?" I asked. I am going to change your antibiotic and you will come back in two weeks. Any smart person would have just let that be enough. Nobody has ever accused me of being smart. "What about my current inability to void?" I asked naively. "We will replace the Foley for the next two weeks." He said that as he motioned to Bubba who stood in the corner with the Foley and was all smiles. Bubba learned to perform this delicate maneuver while running barbed wire on a ranch somewhere in the desert southwest where they have no gloves and no hand lotion.
Once the appliance was sufficiently imp ailed, he shook my hand and congratulated me. In a moment of complete pain and weakness I actually said, "Thank you." Did I say that i have never been accused of being smart?
I requested a wheel chair to make my exit. They laughed. I guess it is with my Valium.
When i checked out I told the young lady that I had lost something since i saw her. She asked what it was. I said, "my dignity. If you see it will you please call?" She checked her paper work to make sure she had my number. Now I know what happened to my Valium.
After we left I took a few moments to lament my situation. Lamentation is one thing that requires no movement at all below the belt.
After a well applied internal poultice of hamburger my spirits were lifted. Next time i take the hamburger before the doc visit.
i am well. i am in a holding pattern for the next two weeks. As far as i am concerned, The Lord missed a good chance to return a few weeks ago.
I do so hope this post is taken well. If not, let me suggest a cystoscopic exam. I just had one and it has changed me!
Blessings,
PA

Wednesday afternoon.

All,
Houston; we have a problem..................
Well, try as i might, the system just will not work. As i type, i am waiting for a phone call to tell me when to report to Kennestone. The doctor plans to do some type of procedure which should correct the problem. All i know is that he mentioned scope, camera, and laser. All of which are far to big to go where he intends to put them. Right now i have no other option. The bladder function is unchanged over the past week. Something has to be done, and I am just the guy to have it done!
When I get through this I should have a working experiential understanding of most invasive procedures which are done without the aid of anesthesia. So, in the future, when you wonder how something feels, just give me call.
I did learn today that the nurse who has done such a great job is not a Christian. Maybe that is why I need to go through this! Just wish i had known that a week ago. But then i guess it is my fault for not finding out then for myself.
Please keep the prayers going. Looks like i am still in the need.
Blessings,
PA

Tuesday, August 12, 2008

Tuesday evening, at hom

All,

Today has been by far the best day post surgery. Again, that isn't saying much; however, it is relative. I am feeling better and stronger each passing day. I am tempted to say that i am 5% better each day. That might actually be an accurate approximation.
Tonight we have had a glitch in the system. It appears that both the bladder and my new pouch are having some complications. A phone call back to St. Pete provided an prescription and a bit of much needed assurance that "things" are normal. Tomorrow i will share my new developments with the bladder with the doc. We are simply believing that tomorrow will bring a simple answer and a fully functioning bladder. Right new we are watching Olympic diving; preparing for tomorrow!
Can't wait to post tomorrow afternoon.
Blessings,

PA

Tuesday, at home

All,
Formerly sick guy, now weak,worn, and highly motivated guy here.
The last series of posts have been a special blessing. It was my delight to say I was better yesterday. Today is a slower continuation of yesterday.
I am a morning person. I can't sleep beyond the rising of the sun. That is why i got out of bed this morning at 11:30. Honestly; I am ruined!
We got out for a while this morning. Well, by the time we got out it was already afternoon. I gave Mexican a try for lunch...........i am still enjoying it. That was probably a bit premature for a new system. Denise and I split a Chimichanga. I left half of my half.
Today we are going to try to get out twice!!! I just can't wait. I feel like the old hound dog in the back of a pick up; excited to go for a ride with his tongue hanging out in the breeze. People tend to stare at me a bit with the tongue hanging out and all. But I DONT CARE!
Have I mentioned that I don't have cancer?
Through all the physical trials, we may have failed to explain that this surgery was the only option to remove any risk of my cancer returning. That is pretty big to us. For over five years now every ache and pain sent me to the doc. Each time he would mumble something about the cancer returning. To quote the great theologian, Chief Inspector Clouseau (Of Pink Panther fame), "Not any muure!"
I have been studding hard for my bladder test tomorrow. At 10:30, i will face my examiner. She scares me. She is 5'4", black hair, brown eyes, and 21 years old. I am shuddering right now!
By this time tomorrow, i hope to claim the Doxology again. Until then, I am longing to be back with you. Thanks for your prayers and love.
Blessings,
PA

Monday, August 11, 2008

Monday, at home

All,
Sick, but improving, guy here.
Today has been the best day since surgery. That really isn't saying too much. Let me rephrase: today has been a good day. Most of the pain has subsided. Nausea is completely manageable. Strength is coming back a bit at a time. Dizziness is almost completely gone. My vision is almost back to normal. All these and more are praises won at the throne! Thank you for your faithfulness in praying. I am living proof of the power of prayer.
Let me clear something up; I don't have a "J-pouch." I have what is called a BCIR. That stands for Barnett Continent Intestinal Reservoir. Most of the people who have this surgery previously had a "J-pouch." You can look it up on line if you want to know more. I am afraid that i know too much about it already.
I have learned that we now have a Blog at church. I man shift from this blog to the Summit Blog. There are many thoughts and reflections rambling around my empty head. Putting these on paper, or virtual paper, helps me organize the random. If you are up for a continual Pastor's Blogg, please let me know.
Blessings,
PA

Sunday, August 10, 2008

Sunday, at home

All,
Sick guy again.
It is almost my bed time. Please forgive me for not sending a note today. We got to spend some time with Jordan this afternoon, and a friend from Guntersville came by.
Pre-season football is on. When did we get into August?!?! I am really behind.
Right now i am watching a bit of NFL history in the making. Bret Favre (whom i met at USM in 1989) is now playing for the New York Jets. Since 1992 he has been the starting QB for the Green Bay Packers. He retired last year and wanted to come back for another season. Who cam blame him? He is being paid almost $13 million for about 16 weeks of play. All that being said; tonight he is on the side line. He isn't even in uniform. He is just standing there talking to his new team mates.
The sidelines are a hard place to be when you are used to playing the game. Soon Bret will make his way into the uniform and the game. So will your pastor. Favre may make is NY start before I make my return, but don't bet against me yet. I will see you soon.
Tomorrow our children will be starting school. Please join me in praying for them as they make their way down strange halls, meet new teachers, learn new routines, and make new friends. These are great and dangerous days. Let us join our hearts in prayer for every teacher and every child and every administrator. These are our responsibility. Let us take them seriously.
Blessings,
PA

Saturday, August 9, 2008

Saturday, day 4

All,
Sick guy again.
I have held out hope that we could be with you for at least a short period tomorrow at church. It is now 4:01 (that is 1601 for military, the short hand is on the 4 and the long hand is just past the 12 for the guys in youth ministry) and hope is pretty much gone. A walk into the back yard and the day long hike back, has pretty well ended my hopes of being with you in the morning. We will regroup and make a plan for next Sunday.
It will be most unusual to be home on Sunday morning. I will be praying for Lee as he preaches and for the church family as they hear and hopefully worship.
Next week i may post some Theology. That is both a disclaimer and a warning. God has put some things on my heart that I want to share. Beyond that, God has confirmed some things that He had burdened me with weeks before surgery. I am anxious to share and get your reflections.
Thanks again for the prayers and love.
Blessings,
PA

Friday, August 8, 2008

Friday evening

Sweet friends,
It is so good to be home. And to come home to a clean home, beautiful flowers, fresh cut lawn and a full fridge - wow - how do i say thank you!! You have blessed us so wonderfully during this time. I have laughed, remembered, cried and rejoiced at your post during this most difficult time. You have touched my soul. Many of you have heard me say that i have a 'low people need.' During the last 25 days i have learned, maybe my need is greater than i had thought!! I do not know how i would have survived the last month with out you all. To be able to share my intimate hurts, fears, praises and request and know that i could trust you to take them to the throne, how would i have made it without you all? Thank you for helping me carry this load. I know there were some special prayers going up on our way home - cause driving is not 'my spiritual gift!!'

I want to have a big party and you all get to know one another - but you know that is what heaven will be - i will just have to wait!! You folks really need to know all the wonderful people i am blessed to know. There are so many you did not get to hear from because they emailed me personally that they were reading the blog and did not post or sent a card and said the same. You truly only got to know a few of the truly wonderful people that have touched my life. I know God's choicest saints.
Of ALL i am truly most blessed.

Thank you for blessing me

nise

P.S. PA says he can't go to sleep without a knock - knock joke!!! The last one made him sleep all night. Not to put any pressure on . . .

day 3

All,
Sick guy again.
I guess i thought i would just come home and jump right back into doing all the stuff i did when i was last here. Boy, was i wrong?!
We had to go to Kennestone today for blood work. I couldn't even make it back to the car. Denise had to drive around the garage and get me. This afternoon we went to a local restaurant for dinner. After collapsing into the booth, and eating half my meal, i collapsed back into the car and was helped into my recliner.
The fatigue is overwhelming.
Did i mention that my bladder is still AWOL.
Missing you all,
PA

Thursday, August 7, 2008

day 2 of my new life

All,
Sick guy here.
Doctor visit was both wonderful and painful. The painful part was right before and after I failed the test...............again. Mr. Foley and i are going be long term partners. I go back next Wednesday for another test. I will study much harder this week. We are not going to press the "Panic" button until then. If another failure comes, they we have to look at some less than desirable alternatives.
The wonderful part was the doc. Dr. Rutland was fantastic! We shared our faith with each other and he asked to pray for me before he left the room. In his prayer he said,"Lord Jesus, do what only you can do; heal this man." That wasn't all of the prayer, but that is what touched these ears. A physician who acknowledges that healing is in the hand of God and not man. I am in debt to Henry Head for recommending him. And by the way; so do I!!
After the visit to the doc, we went by the church to speak to the heroes of Summit. Please let all of them know what a great job they are doing.
Lee is preaching a very special sermon this Sunday. Trust me, you don't want to miss this. Please make every effort possible to come. If you have unchurched friends, this will be the perfect Sunday to bring them. You will just have to trust me on this one. Pray for Lee as he prepares for Sunday.
We will be seeing you soon!
The Vertical
Pastor Aaron

Wednesday, August 6, 2008

Day: The first of the rest of my life

All,
The Eagles have landed. The Johnsons are home.
Denise drove all the way from St. Pete. That is just over five hundred miles and a new record for her. I sat in the passenger's seat and said not a word. That is just over five hundred miles and a new record for me! She drove beautifully.
We came in just a few moments ago, maybe 7:45 or so. It is a certain bet that we have never been this exhausted. I can't help empty the car, and Denise doesn't have the strength. It will wait until tomorrow.
I have an appointment with a Urologist in the morning at 10. A prayer or two at about 10:30 will be most welcomed!
I am just too worn to type. More thanks and love.
PA

day 21.4 Post: FINAL FROM HOSPITAL

All,
Sick guy is headed home!
I would not have survived without your prayers and the care of my bride.
A debtor to all,
PA

Day 21 Post I

All,
Sick guy again.
The nurse came in a moment ago and asked if I were to go home today. I said, "Absolutely!"
Right now i am waiting on 3 different doctors to come by and wave their wands of approval for my discharge. While it could still fail, I really "feel" like i am coming home! That is a pretty sweet word right there....home.
Right now i can't tell you the date, day of the week, and I am not completely certain about the month. Things will be normal when i get back to church. That is home.
Thanks for the prayers you have prayed. They have sent Holy Spirit power, strength, and healing to this worn out old body.
If i post again, it will be merely to confirm my discharge, or confirm my delay. The only thing that i can think of that will delay my discharge is if the infection has spread to the blood. I really feel too good for that. So, i plan on being in the 30102 zip code by mid-night.
Blessings and Thanks,
PA

Tuesday, August 5, 2008

Day whatever post whatever

All,
sick guy with poor computer skills here.
I don't know what i did, but i published before i was ready. So, please read the one below first, then this one.
! tomorrow is going to be completely unique. We are driving home. We will have to stop every two hours for my system. At that rate, we should be home some time near the end of August. No, i plan to sleep in our own bed in Acworth, GA tomorrow night. I will be seeing many of you very soon.
Thanks for making this dark valley navigable.
Blessings,
PA

day 20.75 Post III

All,
Sick guy again.
Well, can it be? All systems are go for discharge tomorrow morning. That is except for the bladder and that system just won't go.
As i sit here in relative comfort i am waxing reflective. These past 22 days have been almost unbearable. The pain, nausea, the random and unusual abdominal pain, overwhelming weakness, and all the indescribable discomfort, have now passed. Now i shift to a learning curve for the future.
Your postings, cards, and most of all your prayers, have kept us going. I was asking for Dr. Kavorkian this time yesterday. Your prayers kept even him away.
A dear friend and physician, John Boggess, told me that in 2001 the University of Oklahoma football team took part in an experiment. When the football season ended, team members volunteered to be hospitalized for a week. They were fed all they wanted. The only restrictions were that they had to remain in bed or sitting in the chair. They were restricted from any form of exercise. The result was startling. These were elite athletes in prime health at the peek of performance. After only one week they lost an average of 40% of their pre-hospital strength. I was neither an elite athlete nor in prime physical condition before coming here. However, i too lost about 40% of my physical strength..............after the first week. Tomorrow will be three weeks. I guess that means that i have 20% less than none. Lane, can percentages be negative? I don't think so.
During the last three weeks i am afraid that i have become a little old man who walks around with a bag. I was never good enough for public display, but it will be a while before i will be back to where i was when last you saw me. So, don't expect too much when you see me

Day 20. 5 12:55 p.m.

Hey all,
not as sick guy's - sidekick,
We have spoken to the Doc this morn - Aaron definitely has a bladder infection and all indications has poutchitus. YUK! He was terribly dehydrated, again - due to the poutchitus. Yesterday he was so nauseous he could not eat or drink and got really behind on his fluid intake. He is on an IV still, is getting his 2nd bag of Cipro and feels much much better. He is off suction again - eating and intubating. Which went well. They are doing lab work to be sure the infection has not made it to his blood stream. He is so much better that i really don't think it has. Yesterday i would have said different!! That is why i sent the call out to pray - antibiotics are really good - but coupled with prayer - that can't be beat!! Thank you for praying - we needed it once again. We are so in your debt in that department - although i must say "some" of you guys i have heard from have been the recipient of a lot of praying in days past!
Word is if infection has not made it to the blood and everything continues to progress - we will get to flee this 'paradise' (i use that term so loosely) tomorrow!! He will come home with the cath and immediately be under the care of a urologist there. He still has a long road to complete recovery, as all keep saying here, "you have had MAJOR abdominal surgery - be patient with yourself." So i ask that you be patient as he recovers once we get home. He will be so anxious to 'get back in the swing' it will be hard to take it slow. I am counting on all you guys to help him take it slow.

Thank you again
love ya bunches

nise

Day 20.1 Post I

All,
Sick guy here.
I live!!! Not much to brag about, but today i will be able to get out of bed. That is significantly more than i could do yesterday. Yesterday was simply miserable. The two times i got out out of bed (1:20am & 4:00am) i almost passed out. Just too sick to function on any level.
The truth is I wanted to call Greg Spry to come get me! For those of you who don't know Greg, he owns and runs the most professional funeral home I have ever worked with. He is keeping up with my blog to see if i take a turn for the worse. He is actually looking for business.
Greg, remember the day you and I both showed up at Jimmy Smith's at the same time? Everybody was in a state of panic! The Pastor and the funeral director showing up at the same time is never good!
Anyway, today has started much better. Yesterday i was too sick to eat. Today i have have enjoyed toast and powdered eggs.
The plan is to discharge me tomorrow unless something like yesterday happens. I can't wait to sleep in my own bed.
Our primary concern is the bladder. As things are right now, if my bladder doesn't improve by tomorrow, they will send me home with the Foley. This is going to make for some very awkward stops on the road.
But i am alive, my systems are up and running, and Denise is by my side. Therefore, what have i to complain about?
And Terry, yes, I remember the rock. And i still laugh about it! Your turn is coming.
Thanks for all the many prayers.
Love and Blessings,
PA

Monday, August 4, 2008

Day 19 5:45 p.m.

Dear Friends,
I am coming to you again in need of prayer. You have been our intercessors and have done such a wonderful job. Yesterday this time we were down to one tube and the promise of the G tube being taken out today. And the full hope we would be on our way home this time tomorrow. Now we are back up to four tubes and don't know for how long. Today has been misery. After a wonderful day - last night everything went south. They really don't have an answer except, 'it sometimes happens, your body just wasn't ready, and it said slow down.' He has been started on the meds for poutchitus (i really don't even know how to spell that let alone completely understand what it is). We have not heard from the urine culture - so it is just wait and see now. At least he has gotten relief. He is back on suction from his stomach and pouch.
I have no answer for why bad things happen to good people other than to say satan is alive and well and active. He is roaming this earth seeking whom he may destroy and if he can cause us to question or doubt or get angry, he has done his job. God has been praised so faithfully through this process that i know satan noticed. When he notices he acts. And as Leigh said so eloquently, ' i can't stand him!'

in His Faithful Name,

nise

Day 19 11:10 a.m.

Dear ones,
I must confess it is so much easier to post when i have great praises and gets more difficult when it seems we back up a little. Leon and Russ thank you for the Word - i so needed that this morning. I know God is faithful, i know He will deliver, i know He will sustain until He chooses to deliver . . . and if not . . . He is still God, He is still good, and i will serve and praise Him.
Aaron did not have a very good night last night. As we reported earlier the cath was reinserted about 8:00 p.m. - that gave some relief. His intubation went very well until midnight. He was supposed to not intubate again until 4:00 a.m. after the midnight intubation. But he 'irrigated' a new addition, at the midnight intubation and got terribly nauseous and went down hill from there. He had meds for nausea and slept until about six - but just can't recover. They are starting IV fluid again, because he can't drink enough because of the nausea and they don't want him dehydrating again. It is possible he has a bladder infection again. They are going to culture to determine. You know a hospital is not the place to get well. Enid you were right!!!
We had such a good day yesterday - the two hour pass was a blessing and i will remember and be thankful for that.

For those that do not know about Denae and Jordan. Here goes. . . Jordan graduated high school this spring and moved back to Athens, Alabama. He is working for a very good friend there and starting school at Calhoun in the fall. He is 6'3' 230 lbs and has a beautiful smile like his dad! Denae is married. Lives in NewPort News, VA with her husband Timothy. He is in the military and spent the last year in Kuwait. Got home in June. They are doing very well. Denae is in school there and is as beautiful as ever and very happy!! I only wish they were closer - but they live in a wonderful area!! She just got a job as a life guard at Ft. Eustis - the post Timothy is stationed.
As i have said before enjoy your children - they grow up and are gone way toooooo fast.
thanks for all the memories - it has been - and will continue to be - a good ride . . .

nise

Sunday, August 3, 2008

Day 18 11:35 p.m.

Yes we are still up!! and Aaron is not a pumpkin! We are awaiting the last intubation for the night - and the Lord continues to bless. The nurse just came in and said you have a phone call. It was Peggy, the nurse we told you about. She is in Boston with her mom that is probably dieing. She called to check on Aaron and to say, 'don't worry, it's gonna be ok.'

Thank you for holding me up when i falter,

nise

P.S. i publish my post, realize there is another post and i read B.J.'s words - you made him smile, thank you!! - but he said, "we don't need to tell everything we know - love you man!"

Day 18 8:45 p.m.

Dear prayer warriers,
Back on that roller coaster . . .
The urologist just left it was not a 'good news' visit. Aaron's residual was over 900 when they checked his bladder - Doc says damage is potentially being done to the bladder so he strongly insisted the catheter be replaced. The nurse just put it back, after pain meds, Aaron is getting easier. Please continue to pray for things to fully wake up. For some reason the bladder is just not cooperating. Doc does not 'think' this will delay 'possible' dismissal Tues. He will just have to immediately find a urologist in Atlanta.
It is really hard to not be disappointed things have gone so well today with the intebating. Once again i just don't understand. . . i hate to see him hurt.

good nite
nise

day 18.75 Post III

To the Saints:
It has been an eventful day here. I am coming up on 10 hours in control of my new system. We were given a 2 hour pass this afernoon! We were back in an hour and twenty minutes. We went to a restaurant and had dinner. It was an uncomfortable delight.
Right now my only real problem is an uncooperative bladder. For some reason that no body knows, it just won't do what it is supposed to. I now have serveral organs fighting for the same volume of space. This is living proof that man has yet to imporve on what God has done.
Please don't stop praying.
If things go according to the schedule, i should be discharged on Tuesday morning. That will be one day early. However, if my bladder remains uncooperative, I will have to wait.
Thanks for all the posts and jokes, prayers and thoughts, poems and encouragement. We are both in your debt.
PA & Nise

day 18.5 post II

All,
Success! A very weird, unusual, abnormal, unique, bazaar, indescribable, success.
PA

day 18.1 Post I

All,
As a child we played a game called "hide and seek." One person was the seeker while all others found places to hide. The seeker or the "it" had to cover his eyes and count to some predetermined number. When the seeker finished the counting, he said, "Ready or not, here I come!"
That is how i feel this morning. About fifteen minutes ago the pouch drain was removed. For the first time in these 18 days, there is no drone of a vacuum machine keeping my pouch empty. In another hour and 19 minutes I will make my first attempt to self-intubate. Ready or not, here we go.
It has just begun to sink in that my life is now forever changed. There will never be a return to normalcy. My new normalcy will be abnormalcy. From now own, every food will be an experiment with a new system. The first day of my new life is today.
The stomach tube will be removed tomorrow if i do well today with intubation. The IV will be removed in a few minutes. My high priced bindings will be gone. Then we begin to learn how to live all over again.
If i do well today; and if can succeed in the intubation process; and can repeat it every two hours for 48 hours, then i will be good to be discharged........ready or not.
Blessings,
PA

Saturday, August 2, 2008

Day 17 - 3:10 p.m.

Hey all,
Sorry to be so late posting today. We have had wonderful company visiting with us today. A former student from the youth ministry days in Boaz, 19 years ago, who lives close to St. Pete now, Kylie. And some 'crazos ' from Summit (i say that with much love and affection) 'Crazos' because they drove down yesterday - - 9 hours - - and have just left to drive 9 hours back. They visited with us this morning, insisted on taking me to lunch, and have now left! Please pray for for my very, very good friends (crazos) traveling back to Atlanta.
Aaron is still very sore from yesterday's procedure. Aaron asked the doctor this morning how such a small guy could hurt him so much. (Of course he had to knock him out to do it. haha!! ) He got the penrose drain out this morning - two more drains to go and the IV. (which they had to restart yesterday due to dehydration). If things continue to progress, he will self intebate tomorrow! This will be an interesting process to say the least. If all goes well with that they will remove the G tube and the suction from his pouch and maybe we will get to leave one day early!!!!!! Provided there are no set backs - bladder has to be fully functioning - no dehydration and intebation process going smothly. We still have a few hurdles but not nearly as many as - - - yesterday!!
It is your prayers, kind- kind words, cards and messages that have made this journey
'do-able'. Thank you seems so inadequate to express my heart.
Please know we love each and every one of you. This experience has reminded me of the 'last' time we traveled this road - very different but in some ways the same. As people came into the hospital (almost 100) to be with me during Aaron's last surgery - each person who came in i felt was my best friend. Thank you for loving me and my sweet so well. Summit through this journey you have only added to the list of 'my best friends'. . .

nise

Friday, August 1, 2008

Day 16 IIa - 3:15 p.m.

Just wanted to pass on a good word. Aaron is back in the room everything went well. He is starving!!
Also just saw Beth's dad - she is going home!!! today!

thanks
nise

Day 16 part II - nise

Friends,

Yes ma'am, tried them ALL. Think the only one that had any possible bearing was the damp heat, to the tummy. Poured water from the coffee maker, so it was more like 'hot", on bath clothes put them in plastic bags and placed them on his tummy (with a towel between to protect the skin). One of the nurses, Nuri, suggested that yesterday. That may have helped, 'cause things are flowing easier now. Hand in hot water, standing in hot water, water running, shower - no affect. . . thanks for the suggestions we have tried all suggested! Really!!!
Did you ever think your pastors wife would be giving tips on how to 'potty'? I sure didn't!!!
I have to say as hard as the last 16 days have been you would be so proud of your pastor. I am. He has impacted the lives of folks here in ways that will last for eternity. He melted the heart of a 3rd shift nurse named Peggy, a 20 year veteran, who 'calls' to check on him when she is off. I think we both have another Mom. (she likes me ok too). We have made friends here that we will carry with us the rest of our lives. When this started this was one area of the country we did not have 'family'. Now this is home too. God really always knows what He is doing. I learn over and over again, 'what satan means for harm, my Father will use for good.' I have to echo Aaron's post . . . Praise God from whom ALL blessing flow. . .

Thank you for lovn' us like we love you,

nise

Day 16.1 post I

All,
Sick guy again. DOXOLOGY!!!
Many of you may not know the Doxology, so here it is:
Praise God from whom all blessing flow,
Praise Him all creatures here below.
Praise Him above ye heavenly host.
Praise Father, Son, and Holy Ghost.
AMEN

Things here seem to be coming on line after a 16 day vacation. Actually it was more like the system went AWOL. Regardless, the return is more welcome than you can imagine.

We are facing a bit of a set-back today. For the first time in many days, I am having a bout of nausea. They think i am dehydrated and in need of fluids. One of the four lines in my "main-line" is clogged. They fear an infection and want to remove it. My veins are a wreck from the months of chemo five years ago and they must have a line. It looks like I will head back to surgery today for removal and replacement of the line. The line is located on my upper right chest. The line is deep into my sub-clavian vein. This is not a procedure you want to be awake for.

Denise will let you know the outcome.

Thanks for all your love and prayers. I am a debtor to the world.
Blessings,
PA